My 90 year old mother has an illeostamy, no other treatment. stage4 . She feels abandoned as she wants to know how fast it’s growing. There’s very little point but she’s obsessed with wanting a CT scan. She’s very depressed. I’ve been told by palliative team they can’t help her. It’s only her GP and district nurse that can. The GP phones her once a month, the district nurse occasionally. As she’s not in pain (regular morphine, self administered) and manages her own stoma she’s being left alone. We do our best but still she feels she wants to know more and no one is telling her anything.
Hi Meikle
I’m so sorry that you mum feels abandoned and from what you described I can see why
She manages her Ileostomy which is a massive achievement. I struggled after two weeks and joined the Stoma Group here which really gave me confidence
Can you phone her colorectal nurses and say exactly how you feel about you mother and how she feels. It’s really not on !
She has the right to ask her questions, she sounds like she’s managing really well
You could phone here for advice they’re really supportive and may have better suggestions
Sending you a hug
Ann
