Hello, the grading of my colon tumour has left me with a choice over whether to start a course of chemotherapy with capecitabine. The oncologist has said its a judgement call as I only have one high risk marker (vascular activity). Appreciate how lucky I am to have this grading. The statistics say I will get a 4% benefit from having it to not on the figures at the five years point (77% moving to 81%). Its an 8 cycle programme over 6 months as out patient with drug in tablet form. Initially my instinct was to proceed. However, I got quite spooked by the possible side effects and being told due to my general poor health over the last 18 months that I was very likely to see some of them. The oncologist's advice was on balance she saw too little reward for the risks, but equally she saw a case for proceeding if I wished. By nature I am a risk adverse sort of chap and this is my third unrelated cancer in ten years and one of those has returned, which makes me pessimistic at this one returning too. At that point I swing back to proceeding. Cutting to the chase, I was wondering about the experiences of capecitabine by members of this forum?
Hi Maninbath sorry to hear your Cancer returned at the time I asked if any other Chemo could be offered he just said nothing else is licensed in the uk and the cancer was removed in it's entirety so I quess I have to trust them even though they said he is high risk for it returning I hope you have a good outcome with treatment
Hi Captain Pugwash,
I had 3 months capecitabine with oxaliplatin.
I honestly did not find it too bad. I vomited once before eating and fainted once after going for a walk (something I have never done before in my life). I felt tired but really not too bad.
The worst problem I got was that the skin on my feet became dry and very vulnerable to blisters which in turn could easily become open wounds which got infected, so I had to go on antibiotics.
I had an unpleasant sensation when drinking cold drinks but not too bad.
I was lucky in that I was left with no permanent damage at all and am glad that I had the chemo.
Having said that I only had 3 months as my oncologist said there was research that showed that for patients that matched my profile that was all that was required.
All in all, it honestly wasn't too bad in my case.
Take care.
Many thanks Jogey for your note and sharing your experience. In the end I agreed with the oncologist that the benefit from chemo in my situation was outweighed by risk of side effects, particularly given my existing heart condition. So we agreed no further treatment for me and I'm now on an annual review cycle. Appreciate I was extremely lucky that my situation allowed this decision. Thank you for sharing and I hope you are doing well.
I’m glad you’ve been able to decide how you want to proceed. I don’t think anyone would begrudge you that choice. I’ve been looking at what might be my only other option, and have pretty much decided that I’ll decline it. The weekly trips to the hospital, and likelihood of side effects, would have too much of an impact on my quality of life. Wishing you the best of luck going forward.
Hi Captain,
Makes total sense and really hope all goes really well for you .
I'm doing well thanks,
All best wishes
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