Colon cancer

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Hi

What should i expect at my first oncology appointment and does treatment start quickly .

I believe iv to get radiotherapy and chemothraphy to shrink tumour .

Im extremely anxious at best of times so Im trying to prepare myself for appointments.

Thanks in advance .

  • Hi  Yes chemoradiotherapy is frequently used to shrink the tumour prior to surgery so the surgeon can remove the tumour with a clear surrounding area (clear margins) and leave as much remaining bowel as possible. 
    The chemo part is a low dosage in tablet form which enhances the effect of the radiotherapy. They will probably discuss the treatment and warn you of potential side effects - this can sound a bit scary but you’re highly unlikely to get all of them and, as I said, it is a low dosage. 

    I had 5 weeks chemoradiotherapy before surgery in 2016 and the only real side effect I got was a prickly feeling in the soles of my feet which went after finishing. Others have reported tiredness and diarrhoea but you will be given tablets and creams to help with any problems. 

    I’ve attached a link to a booklet that I was given at my first appointment which may help but happy to answer any concerns that you have?

    https://bowelcancerorguk.s3.amazonaws.com/Publications/YourPathway_BowelCancerUK.pdf

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • I had just one appointment with the oncologist, who had a good reputation amongst his colleagues. From that appointment things started to happen very quickly and I had a preliminary operation within several weeks, chemo radiotherapy shortly after then major surgery, all at a brisk pace. Just follow the recommendations - chances are they have seen it all before! Do not worry, everyone involved is on your side.

  • Hi Smiffey

    The pathway document suggested by Kareno62 is really valuable and can help you understand that there are different treatments depending on various aspects including tumour location, spread, etc.

    For me it was also a great way to learn a bit about the anatomy and cancer terminology aspects, so I understood the appointments better.

  • I just saw this post with the link and it's such a helpful document! I wish I had been given it back in May when I was diagnosed . I will use it to pull together some questions for my oncologist appBlushtomorrow . Thank you for sharing Blush