Hi has anyone experienced metastases to the Retroperitoneum ? Plus lungs.
Hi Caz999
Welcome back ! How are you getting on ?
There has been a lot of people with a spread to both areas and you wi also find them on Bowel cancer U.K. if you are looking to connect .
Like everything else in the world of cancer location and size of the spread seems to determine treatment. Some are perusing treatments like Hipec , previously the lung spread would knock out that option but I have read on some hospital sites that small involvement is not always ruled out and best to approach these centres of excellence directly .
A lot of patients use chemotherapy .
Take care and I hope you are doing ok .
Court
Helpline Number 0808 808 0000
Hi Caz999
Absolutely . I will keep bumping it up for you . I am sure I spoke to someone recently . However my memory is not coming up with it today .
Just thought I would link in this post as they seem to be navigating some of the treatments that might have a cross over with yourself although a different spread .
Have you come across Mr Murphy’s information on treatment the peritoneum. I found it quite informative and his name comes up a lot .
I will keep looking back the threads .
Take care ,
Court
Helpline Number 0808 808 0000
Hello there
The answer to your question is yes, my husband.
He was initially diagnosed as stage 3 (EMVI and PNI positive) 3/20 positive lymph nodes and had a right extended hemicolectomy R1 resection in Sept 2001 with 3 months of Capox.
6 months after he was given the all clear and we were elevated and he started surveillance.
6 months on his CEA had risen quite a lot! A scan was undertaken that showed a spread to the retroperitoneal, lungs and supraclavicular.
Naturally we were quite devastated, we both found it harder the second time round. My husband was told it wasn’t operable or curable but treatable and shortly after started palliative chemotherapy.
Shortly after my husband started targeted therapy Cetuximab along with Folfiri, and appears so far to have had the most amazing results with shrinkage. As far as we know this treatment is permanent, until perhaps it stops working, and than he will be given an alternative.
The treatment regime is quite gruelling and very time consuming, and my husband is fortunate that he has worked full time (from home) throughout, apart from having 3 weeks of initially, for the operation. However, we can’t complain, because as far as we are concerned this treatment is keeping my husband alive, and we are still getting out and about enjoying life.
I really hope this helps!
All the best.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007