Start of chemo radiotherapy

Hi Claire

I have been thinking about you this last couple of days.

Hope the treatment is going ok (apart from the bleeding) Have you spoken to your nurse regarding the extra blood?

My huaband starts his in a couple of weeks, so we will have to keep updating each other on the way.

Take care Kell xx

Hi Kell

no we only got home at 7 tonight as it’s a long drive so I will call them tomorrow.. I felt like a proper newbie yesterday but today I knew the drill so it wasn’t as scary as I had imagined. Worst bit is having to drink water to have a full bladder and worrying I won’t be able to hold on! So far so good though!  Hope your husband sails through

Claire x

Hi Claire

I had 5 weeks of chemotherapy and radiotherapy which finished in March this year. I had Stoma surgery in January due to the severe symptoms I had. My consultant didn’t think that I would manage the side effects and had concerns about bowel obstruction.

So I’m not sure about your blood output. My colostomy bag was extremely active throughout the treatment. I was exhausted towards the end and the few weeks after the treatment was the peak of the symptoms.

I had/have peripheral neuropathy which is annoying, and also some radiation burn, however use the cream they prescribe and the vaginal dialator, if you’re lucky enough to qualify

good luck and keep strong.

Liz 

Hi Claire,

Just wanted to pop on and see how it has gone for you this week?

Hope everything is ok and not suffering with any side effects.

Thinking of you

Take care Kell x

Hi, I had 3 days last week as the first week and started again today, so far so good and no major issues apart from some bleeding and feeling very tired. It was nice not to have any treatment over the weekend and I felt less tired. Thanks for thinking of me x

Hi Claire 

Glad you are coping well so far. Make sure you rest as much as you can as it's exhausting towards the end.

I'm seeing my consultant on Thursday to discuss surgery now the tumour has shrunk a little after the chemotherapy and radiotherapy. 

Hope you continue to manage the side affects. Get that moisturising cream on sooner rather than later. I wish I had.

Liz x

Hi Claire,

I am so glad everything is going ok and no major side effects.I do hope the rest of the treatment remains the same.

Sound daft but we are counting down the days until Tony can start his treatment, it has been a long, long couple of months.

Take care and keep in touch.

Lv Kell xx

Hi ECG

I have just been reading your messages to Claire.

My husband starts his chemoradiotherapy next for week 5 and half weeks. 

Did you have a lot of side effects? I just want to be prepared for it all eg get certain food in etc. I know everybody is different but I want to feel like I am doing something.

Good luck with your consultant and please keep us updated.

Take care love Kell xx

Hi Kell,

yesterday was the first day I felt really down, no particular reason maybe it just dawned on me finally that I actually have cancer! Sounds crazy I know but I’ve been just doing what I’m told and been where I’ve been asked to be at the time they told me. I felt really tearful waiting for my session which was delayed a long time for some reason. Anyway today was much better and although I difb t feel as physically well (had to take anti sickness and anti diarrhoea tablets for the first time) I actually came home feeling ok and not so tired. It certainly is a roller coaster of emotions ♀️

hopefully it will continue. I was just the same as you though, the wait for it  to start was awful 

, now I’m waiting for it all to end! No pleasing some people 

claire x

Hi Liz,

I’ve been using aveeno cream even though as yet no sign of sore skin, hopefully that will keep it at bay. It’s a bit weird being in the machine with no obvious signs anything has been done! Feels a bit like it’s happening to someone else and I’m watching a film. Thanks for the advice re the cream as I had started to wonder why I needed to use it every day!

let us know how you get on after your consultation

claire x