Immunotherapy,and when it may stop

Hi,

I’ve just started on it along with oxilaplatin and folfox. 

Oxailaplatin was part of my chemo, but I didn’t do both together 

I’m diagnosed recurrence now stage 4 incurable and inoperable so started my plan 2 nd cycle of immunotherapy oxilaplatin and folfox altogether xx 

You might want to ask our helpline staff about the guidelines for this Quilter 0808 808 0000. Also Bowelcancer U.K. has a nurse you can email . 
The other Avenue which might be similar is the lung or melanoma forum as they have had funding and treatment for longer . There would be no problem posting on either to ask how long they got funding for . I have two years in my head but I think I have seen some on it for longer . Alternatively you could check the Nice guidelines . They are available on Google and seem to set most policies around them .

Take care ,

Court 

That is so strange Cath!

Jay is more or the less the same as you stage 4 incurable inoperable but I asked about immunotherapy and was told it wasn't an option I also asked about targeted therapies and they said that wasn't an option either. I daresay they may have looked at it but can't tell. Everything I have asked has come back as a `no`. Post op chemo `no` Immunotherapy when the chemo didn't work `no` targeted therapies `no` oh and radiotherapy seemingly was looked at and guess what `no`. I don't know if it the team who were dealing with him but I just feel that anything I asked about has been dismissed. I even recently just before he became really ill again asked about a clinical trial. I contacted his now oncologist's  secretary but unfortunately when I asked about that she was on annual leave and then the oncologist was on leave she got back to me last week saying she would pass my thoughts on a clinical trial on to the oncologist on her return from leave but by this time Jay had taken a turn for the worse so it now looks as though nothing can happen. Sorry if I sound really bitter but It just feel anything I have asked about in alternative treatments as I said have been dismissed. 

Vicky xx

They did genetic testing in me and I was compatible to receive it along with Oxilaplatin and folfox. Hopefully works and I’m hear a bit longer. 2 cycles in. I realise you’re replying to this Court but saw my name. 

1. Sorry to read about Jay yous are in my thoughts.

Yes Sorry Cath 

Just when I read your post and know you are a 10 year recurrance incurable and inoperable.  Just seems so unfair and all that he has been through has been for nothing. I just keep hoping even at this late stage they may come up with something but doesn't look likely all he is receiving is pain management now.

xx. 

Hi Vicky. 

Im on morphine tablets pain management for my hip for the tumour sitting at the base of my spine. I’m sorry to hear that about Jay and his treatment. 

Im glad they are giving me what they are. Remember I was diagnosed last year and have just started a year after this. 

• And the outcome hopefully will give me a bit longer.,That’s the  plan anyway. 

So sorry to hear for you both. Like Faloola, my immunotherapy was based on genetic testing.  Hang in there