Post surgery

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Hello everyone, 

Thank you all for sharing your stories. I’ve read some some of the journeys you’ve had to endure and you are all very brave. 

My mom was diagnosed with stage 3 rectal cancer last November. Since then, she’s completed her chemo radiation therapy. She unfortunately didn’t continue with chemotherapy as it caused blood clots.

Today, as I type this she has just woken up from robotic surgery, to remove the tumour in her rectum. I’ve found it very difficult as I live and work in Australia. I’ve been home for a long stint in between but at the moment it’s just been that extra bit hard. 

The doctor and surgeon say, she will have a permanent stoma. They also have mentioned that they need to do a biopsy on the tumour removed to see if they have “gotten it all”.  This news worries me, to think that it might still be there or come back. She’s broken her back vertebrae recently and the brain blood clot from chemo really set her back. I just want it all to be over. I just want my mom to have her life back. 

I am a school teacher and I’m suffering from a lot of stress with all this news and the waiting. I feel like sometimes I’m the one going through it which sounds ridiculous. If anyone has any tips for me, or for my mom with her stoma/ post op/ waiting for biopsy/ positive outcomes please let me know. I would appreciate it. 

thank you x 

  • So sorry that you and your mum find yourselves in this situation.If you pop onto the iliostomy,colostomy and stoma site you can ask anything and there is lots of advice available.Do click on peoples names as well to read their stories.

    All the best

    Kath

  • Hi Tina Tina. The biopsy of the tumour is standard procedure. They aim to remove the tumour with ‘clear margins’ which means removing the tumour and the surrounding area. They then send what they’ve removed off to the lab for analysis. If there is any sign of cancer cells in the surrounding tissue or in the lymph nodes then chemo is normally recommended. Your mums team will be aware of the blood clot issue so will take that into consideration but it may well be that none is needed.

    The stoma can be a bit daunting at first but I’m sure she’ll quickly get into a routine and she won’t be discharged until the stoma nurses are happy that she can change the bag herself. There’s a great board on here with lots of tips and advice. 

     Ileostomy, colostomy, urostomy and any other stoma support 

    I can appreciate how difficult it must be for you being so far away and your mum is probably trying not to worry you either but she’ll be well looked after in hospital.

    If you click on my profile then you can see my treatment since diagnosis in 2016 and I’m currently still cancer free

    Please keep posting and we’ll help and support you both through this

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm