New diagnosis growth in ascending colon

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In February I had a 3-week episode of severe abdominal pain. Initially I thought it was IBS as I’ve suffered from that for years. I was referred to the Hospital for a colonoscopy by my GP after a stool sample test showed old blood present.. The colonoscopist found a large growth 5.5cm at the top of my colon (ascending) near the appendix which was obstructing at least ¾ of the colon.  He took several biopsies, but the initial visual diagnosis is that it was ulcerated and  appeared to be a malignant cancerous tumour. 

The week after I had a CT scan and have now had some feedback from the Multidisciplinary Team.  The biopsy has come back as negative for cancerous cells but apparently that often happens as the biopsy only comes from the surface of the growth 

After looking at the CT scan the radiologist has seen no signs of metastatic disease (no spread) in the surrounding tissues or lymph nodes. He did see an Intussusception (folding/telescoping) of the ascending bowel. I did sone research that suggests that 55-60% of Intussusceptions are caused by malignant adenocarcinoma.

Current plan is a surgical colon resection but still waiting for the “waiting list team” to get date, but it will be roughly 4 weeks. 

So no definite diagnosis of malignancy, but the beginnings of a plan.

I’m a secondary school teacher and I’m trying to decided if I go back to work next week for 2-3 weeks before surgery (it’s the last run up to exams for my year 11’s and 13’s).

I’m putting a claim in for my Critical Illness cover but it seems they would need a histological grading (from the post surgical histology) to grade the cancer before they can proceed.

  • I've just had rectum cancer and had a 3.5cm tumour removed in Jan 6th and undergoing Chemotherapy 4 cycles in hotel as there was blood vessels left behind got my 3rd cycle friday/tomorrow 

  • Hi  

    Welcome to the forum .

    My friend actually had a intussusception due to a complication of covid of all things . It sounds as though you are getting a plan together . My mum’s tumour was right side ascending . It has given her very little long term issues in terms of regaining control post op . 

    The only point about working before the surgery I would definitely take some time to make sure you don’t catch covid . I think they then postpone surgery for around seven weeks due to the risks of embolisms being greater after covid . It’s great you are thinking of your pupils , I personally find that very conscientious but it might be one year where you have to think about your health needs too .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Funnily enough I got COVID again (2nd time) the week before the colonoscopy. Luckily I tested negative a few days before.

  • Hi SAM2064.

    Regarding Critical Illness cover - my CT scan before surgery did have my initial grading. Maybe worth double checking whether yours did - check Consultant letter back to your GP debriefing on scan findings, if present it will be near start by diagnosis.

    If so, you could check whether insurance will accept that grading for now.

    As for Covid close to op - i had it just a few weeks before surgery. No-one even mentioned option of delaying. However i DID struggle with complications post op so had extended stay in hospital. I'd suggest being cautious about exposure to viruses in weeks leading up to op.

  • That helps considerably , am I allowed to say that ! 
    Grinning

    Helpline Number 0808 808 0000

  • Surgical Consultant meeting today so I should find more. Still not officially a cancer as the histology from the colonoscopy biopsy was inconclusive but apparently that’s a regular thing. Will have to wait for post operative histology.

    This is a good article/case study www.frontiersin.org/.../full

  • Well I hope it goes OK for you best wishes I haven't heard of your diagnosis sorry only read up on my own as it can get a bit overwhelming all this pamphlets all the best

  • Well you really have been through the mill Sam I hope everything sorts itself out for you wishing you all the best take care Evans

  • Surgery booked in for Thursday 11th., pre-op on the 9th. Laparoscopic Right Hemicolonectomy.

  • Oh thats good to hear at least you got surgery booked in wit all these strikes I've got my 4th Cycle Chemotherapy on 5th May last one I hope Evans