update simon

Wow! Jkee! Now they say he doesn't have cancer?? That sounds like a relief but then again it will always be at the back of your mind `it could come back`. We're sort of in limbo again. The oncologist told Jay on Thursday as I mentioned that because of his recent hospital admissions, he would be too weak at the moment to consider any kind of chemo just saying when he feels a bit fitter and mobility a bit better to phone for an appointment with the head oncologist, so I really don't know how to take that either. In one way I am saying well it can't be anything they are concerned about and then the other way I'm thinking will it get worse. I would just love the day that Jay goes in and they say to him `you're cancer is gone` that would be better than winning the lottery. At the moment its his recovery form sepsis I'm more concerned about other than the cancer although that will still be there. Hope Simon picks up soon with his bug but you'll be pleased that at least he's home. Take Care. 

Vicky xx

Hi Vicky what a rollercoaster we are on won't say cancer free but I would have been happier if he could have had the chemo to mop up and cancer cells around his body instead we had to stop. But yes I quess they took the cancer from his bowels and lymph nodes so I am sure we will just take one day at a time which I'm sure we all do after cancer sitting up for 2 nights has been draining thought we would get home see grandchildren enjoy our lives for a while but no sickness bug you really couldn't write it could you. I glad to read small steps in your house crying is the only way I feel better but really need to one day put my face back on and lippy and feel good sure we will get that down soon all of us xx

Hi Jkee 

hope today a bit better for your hubby and yourself.   keep the postive thoughts that have surgery done main job!!

now wash those tears away , put on some lippy to lift your spirits even if just for a few hours.

Thankyou another saying tomorrow a new day if tonight is better hopefully no bug for me shower hair and lippy planned had sleep on sofa today now cup of tea feel bit brighter Simon still on toilet but hopefully the gaps are getting longer xx

I would say that if he's been operated on, & they have removed the cancer...the main job has been done. Obviously, the chemo for mop up clearly had an adverse effect on his body. Probably best to leave well alone now, & just allow for post operative recovery.

Nobody can know if cancer may return or not in the future. However, Simon will most probably have six monthly scans & bloods taken, for the next five years, & if anything untoward shows up - it will be followed up & acted on immediately.

Wishing you both the very best.

Marianne

Thankyou Marianne I think all the trauma and emergencies from Christmas and all the drama we felt like chemo for 6 months gave us a better chance but yes at the end of the day chemo was as doctor put killing him. Unfortunately he's in bed from 10 days in hospital with chronic diarrhea for 2 days nightmare. Glad you are feeling better and happier x

You've both been through a really rough time. Time to heal comfortably at home now!

x

Hi Jkee 

If it’s doing more harm than good then I would accept the decision. They seem to work on a risk / benefits system . 
Surgery is still the gold standard .

My mum did not have chemo after her liver surgery . Still clear since 2010 in that organ .

Take care ,

Court 

Thankyou court I'm sure if he wasn't suffering witha nasty virus from hospital now as well we could sit down and talk about it. Thankyou for making me see it in a better light xx

I really feel for him . He has had one rotten time . No place like home for some quality care and hope he improves soon .

How is your son getting on ? And also important, how are you holding up ?

Court