Advice

Hi Hblight 

Welcome to the forum . 

I am wondering if it’s actually mucus that your dad is experiencing. 

https://www.nhs.uk/conditions/colostomy/risks/

Have a look in this page and it covers discharge and potential solutions .

A lot of people think they are still going to the toilet .

We also have a stoma group your or your dad might find helpful .

Take care ,

Court 

Thank you so much, it’s hard seeing someone who was so strong and relatively fit for his age suddenly reduced to this. 

His surgery was messed up so it’s been a tough time for us all. Thank you for replying x

Hello!  

Sorry to hear this. My husband had a bowel resection operation in 2021 which has resulted in a permanent colostomy. He manages his bag well. As Court said you do still get the urge `to go` although nothing comes out your bottom and it all goes into the bag. Think the brain is still sending signals to the rectum that it comes from there. Jay (my husband) still gets a discharge from his back passage like- hopefully not being too graphic- a slivery coloured slime. He's asked about this and they said it's just something that will always be there unfortunately but its nothing serious. He needs to wear disposable pants at night or pads going to bed. Yes I know what you mean it is so hard to see them `disintegrate` from what they were. Jay was always so happy-go-lucky and a cheeky chappie type but I very seldom see that now. Now and again his cheeky banter comes to the fore and then I know he's still in there somewhere. Take Care. 

Vicky x

Hi Vicky, thank you. We were never told about the discharge, so every time my dad stands up it runs down his legs ( I’m sorry to be grafic) as you can imagine it is a shock to us all and he is so embarrassed by it. He is still in hospital but moved to an urology ward ( kidney) so they are not used to caring for patients who have undergone bowel resections. I’m guessing if he was still on the colorectal ward they would of informed us and given him a pad to help.

Take care and thank you. It’s nice talking to people that have gone through or are going through a similar situation. 

Hi Hblight 

Oh your poor dad . Dignity is everything so I would definitely have a word with the staff . They will have plenty of pads to help him . 
It’s early days by the sound of things and each week makes a difference. 

Not easy seeing your loved ones go through this but he clearly has a good team on his side .

take care ,

Court

Hi there I had a loop Ileostomy which was reversible a colostomy can be the same which as it’s loop this can happen. Please join 

 Ileostomy, colostomy, urostomy and any other stoma support 

Theres end colostomy and end Ileostomy’s I know it’s confusing before I had rectal cancer I didn’t know what an Ileostomy was !

It’s a steep learning curve 

There’s so much advice from others and lots of threads from other members 

Try not to worry there’s lots of support whichever your Dad has there’s help 

Sending you a hug x

Thank you I will have a look. We haven’t had the best experience to be honest, he has been in hospital since January 6th, I am hoping they will discharge him home this week. 

Such a long time for him . Getting home will be a great encouragement to him. Each week you will see progress and hopefully he will strengthen .

My own mum was in hospital for a month Sep/oct . The first few weeks she made progress but six months later I can really see her strengthening.

Nothing like a loving family to assist .

Court 

Totally agree Court. I repair so much quicker at home. My bed,  I find hospital stressful though they do an amazing job. Getting homes the best 

It may be an idea to prepare at home and get some pads in. I had them delivered. I barely used them but to know o had plenty gave me confidence. I also took them in with me. Just in case ! 
Hope your Dad improves and gets home soon