Updates on Jay

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So, Jay has phoned this morning to say that he won't be getting home until they are happy with his kidney function. At present it is sitting at 27-29% and it should be up around near the 60 mark. I spoke to the charge nurse on the phone this morning and she said that it is increasing be it slowly. When he was admitted on Thursday it was sitting at 22 so they want it I take it as near to 60 as possible. She said they are going to keep on with the fluids and continually check his bloods. She said it will get there but it can be a slow progress and they are not ready to let him go until they think it is acceptable to do so. This is what happened to me when I went to my yearly review because I have a medical condition. I too have low kidney function but I think mine is sitting at around the 40 mark somewhere which they don't seem concerned about. On the upside, his stoma seems to be working ok again but just need the kidneys to start behaving now. So this has been a setback from what they said earlier this week about the kidneys getting better just hope they can get them to an acceptable level. Not great news to start the year. 

Vicky xx

  • There can be a delay between one bag finishing and another going up . I would think that is perfectly normal .

    He is being well taken care of and it’s understandable he would rather be home .

    Court 

    Helpline Number 0808 808 0000

  • Thanks again Court, Yes, he phoned earlier absolutely breaking his heart with boredom because he just needs someone to talk to. He said this is the worst time this time at night until about 6a.m. in the morning no one appears just even someone to come in and talk to him for a few minutes. He says he just lies and stares at a window or looks at a toilet door he's got his kindle to read books but think he's nearly finished them all and the wee TV but he says sometimes he can't be bothered with that either.  He finds it hard to sleep during the night obviously because he's not doing a lot during the day and turning night into day as he says he naps more through the day. I just feel so helpless that there is not a lot I can do for him for now. 

    Vicky xx

  • Having spent a few lonely nights recently in hospital overnight with my parents , he has my sympathy. Apart from being so noisy there is the isolation aspect .

    He will hopefully be home soon.

    Court 

    Helpline Number 0808 808 0000

  • So, Jay is not getting home today. They are looking at Friday now be it this Friday, next Friday or whatever Friday they decideWeary. His kidney function level is still not acceptable they are saying. It is sitting at the 30% mark and they want to see it up to at least 50. It's only went up 8% since he was admitted last Thursday when it was at 22 so heaven knows how long it will take to get up to 50 if its only at 30 that's why I'm saying `pick a Friday`. I really did have my hopes up that he would be coming home today but it's not happening now. This has put him into a downward spiral again because I think he got his hopes up that he was coming home today too. They've told him it's nothing to worry about but that's easier said than done. Everything else seems to be ok his bloods, blood pressure, blood sugar etc so don't know what's going on.

    Vicky xx

  • That must be disappointing for you both. I recognise that downward spiral. Keeping my husband optimistic and as cheerful as possible seems to be as important as him getting the best treatments and medicines. I hope you have ways to look after yourself as well as your husband and I hope his kidney function improves well enough that it’s a happy Friday soon

  • Hi Vicky, I'm sorry you've been worrying about him neibg in there and know new years eve was a bad evening, and you've not had a new tears eve apart in so many years, I can understand  you're feeling deflated,  but he's in the right place to get him all the help he needs to get his kidney functon up. Stay in touch, and don't lose hope. He'll do all he can to help himself sorted to get home to you, tue dra will do the rest. 

    My consultant called out of the blue yesterday, I have to see her next Tuesday, she's not at work this week, which h has made me twitchy, I think I told you that I'm still exhausted after both ops, and that I have an unshakeable feeling that they have missed cells and it back, the margin was so small, 1 or millimetres, fingers crossed its something and nothing.

    I'm here if you need an ear to listen and rant to. Sending big hugs Rosie xoxo

  • Hi Rosie! Thanks for that good to hear from you!  Yes, i'm just so deflated I was really looking forward to having him home today but obviously the powers that be have other ideas. I can't even get to see him because I can't drive and the hospital is away the other side of the city and you need to negotiate motorways etc to get there. We have a hospital minutes away from where we are but obviously it doesn't have the facilities they need to treat him, and this one does. He's on the phone constantly though and he is making me feel guilty now because he says he's been moved to another ward with 4 beds and the other ones are getting visitors and he's the only one who hasn't had any. I got up to see him on Monday though William was able to take me up. He is looking a whole lot better than he has been of late mind. I just don't understand why his bloods, blood pressure and blood sugars are all fine but it's just this kidney thing that they want to see an improvement on before he can go anywhere. So frustrating for us both. Take Care. 

    Vicky xx

  • I forgot you don't drive, I know you were thinking of getting your license, thats hard on both of you  you'll miss each other a lot, 39 years is a long time to be together, and you're also worried, I'm so sorry, I know when I was in for the ops and the week that my bowels went to sleep, I knew it was a hellish drive foe Steve amd about 35 miles away, and though I was missing Steve I told him not to visit, then I sent a picture of a meal i was given, mashed spuds, mashed carrots and a piece of breaded chicken that was very thin, in breadcrumbs and was like leather, I shouldn't have done that, he came every day, he brought me hot soup in a big flask and some butties, he'd bring me lobby in the flask, as I was losing so much weight so he'd just turn up with lots of food for me. So I know it's hard, we've been together sine 1994, lord nearly 30 yrs, that went quick. He's in the best place, even though you can't get there, hopefully he'll pick up and be home soon. I wish I capuld help you, but you're a long way off, ask William, he should take you a couple of nights a wel, if he can. It's a lot to ask, but I'm sure he'd do it. I'm here if you need to have a rant or need a shoulder, well virtual shoulder. Chin up, Rosie xxx

    Butties are sandwiches and lobby is a basic stew, shin beef, onions, carrots and spud, cooked in a big pan on rhe top of rhw cooker,and thickened with gravy gradanuals. Simple, cheap but very tasty, if they'd done that every day on hospital he'd not needed ro come visit, even better with dumplings,Lord  getting hungry just thinking about it. Take care xx

  • Thanks Rosie! 

    Yes William has been nipping my ear as well to get my licence back as well so maybe something to think about. I just can't focus on anything just now until I get Jay home. Everything is just insignificant just now while he is in hospital. Jay is eating ok in the hospital he said it's 3 meals a day but sometimes he just skips breakfast too much he says for what they give you at lunch and dinner at night. When I saw him on Monday he looked as though he had `beefed up` a bit he was looking really `scrawny` before he went in last week especially his arms so he has a bit more meat on them now so the dinners plus what they are pumping into him must be working. I just hope they can get his kidneys sorted because he says this is all that is holding him there now. Take Care.

    Vicky xx

  • He is making slow progress but it’s still progress . So pleased you got in to see him . That would cheer him right up .

    Take care ,

    Court 

    Helpline Number 0808 808 0000