Hello all,
sorry this is a degree of overlap with my last post about lab results.
I had a week of radiotherapy and 4 cycles of capox after stage 3 rectal cancer diagnosis in April. Surgery exactly a month ago removed tumour with what they described as ‘good margins’. I have now a permanent colostomy - which is absolutely fine - other than I am back in hospital after the ‘rest end’ wound became infected. It was washed out in theatre yesterday and they found a fistula, which has been causing vaginal discharge (sorry if tmi!). Now got drain in and on Iv antibiotics.
What I’m wondering if anyone has any similar experience if is my oncologist meeting yesterday. The lab results showed 18 out of 19 lymph nodes and vascular invasion - described as high risk factors. The oncologist however said that (leaving aside the problems with my wound) more chemo would not be suggested at this stage. They will review my bloods and more scans in 2 months so see how things are. I got so upset, felt as if we’ll see you as and when the inevitable happens. I had been so elated after the op to be told that it had been removed with good margins. This now doesn’t seem to be the case and I didn’t understand why more chemo isn’t thought to be a good ‘belt and braces’ approach at this stage.
I do remember the amazing Court saying in one message to someone that capox can’t be given too frequently? Mine finished in October. It was tough at the time but I got over the fatigue etc after a couple of weeks.
sorry for the rambling post. My brain is tired and not processing things well I don’t think. I often find the posts on here easier to understand and more positive.
best wishes to one and all. Moira x
Hi Moirq.
With nodes and invasion i'm pretty sure they will be asking you to do more chemo - could you not jot your oncologist a quick note to reclarify?
It may well be just allowing your body to really recover on the wound front first. But i'd suggest your specialist nurse or oncologist will swiftly and professionally able to tell you for sure.
I'm currently on 12 cycles of chemo for similar.
All the best for now.
Thanks Crumpets,
I had chemo before I had surgery (reading your ‘bio’ I’m not sure if you did?). I got an element if ‘we can’t give you too much’ from the oncologist, but don’t really understand as the chemo I had before had little effect and I’m over the side effect. They are going to arrange another meeting with her.
well done you getting through all you have. How are you finding the chemo?
thanks again. Moira
Finding chemo challenging but i'm focussed on end goal. So my logic is that if this 6 months of chemo is like the tough mountain climb, i'll looking forward to the stunning views at the top.
And thank goodness for streaming TV, sofas and duvets
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