Will Things Ever Be The Same Again

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Hi Everyone!

I'm not on here tonight for the `poor me` scenario but looking at it as a support and carer for Jay, I am asking myself if things will ever be the same again. He is just not himself at all and I can never see him getting over this. He goes for this new chemo treatment starting this Friday and goes in tomorrow to get his PICC line inserted the thing is that is getting me now is his eating habits. He was always a `foody` but now, it takes him all his time to clear his plate. Jay was always a one at nighttime dinner to have his main meal then a pudding be it a yogurt or some ice-cream and then his cup of tea/coffee with a biscuit or something. Later in the evening he would maybe have a bag of crisps or nuts or something but none of that never happens anymore. He's lucky if he makes it through his dinner. Ironically, I used to wish he would stop eating so much because he ate like a p*g and now I'm worrying he's not eating enough. He gets up in the morning and makes himself something I know that because when I get up, I can smell something has been cooking. Then he will ask what is for lunch sometimes I don't bother with lunch, but he finds himself something like a cuppa soup or similar. At night though, he can have hardly anything on his plate but yet can still leave something. He's gone from 148kg from last year which works out about 22/23 stone down to 117Kg which I believe works out at 18/19 stone, so he's lost about 3 stone which I don't know is a lot for him and his height. I know he's constantly stressing and processing about his cancer diagnosis and this will all be contributing to it. Even when he started his first round of chemo when the cancer came back he was still eating well but since he got ill around about the 4th cycle of CAPOX his appetite has dropped considerably but then last week he said he felt he was getting it back again but now it's all dropped away again. I would just love to have my `old Jay` back and don't see him returning anytime soon we don't even have a carry on any more used to playfully grab one another now if I do that, he says to leave him alone or I feel pushes me away. I have said that to him that he pushes me away but said he would never do that, but it certainly doesn't feel like that. I just want to see happier days happening for us but those seem so far away in the distance just now. 

Vicky x

  • Hi

    Sorry to hear what you are going through but bear in mind you don't understand what he is going through and things are different,  it's just a matter of getting used to, then you will start enjoying your life again.

    Sending you my love and strength x

  • Sorry to say, but no, 'things will never be the same again.' You will both have to make adjustments in your life, following on from your husband's diagnosis, which doesn't mean it will be awful, but just needs a new way of looking at things.

    Your husband's way of eating has changed - let him eat what he wants, & when he wants to eat.

    He's going through a very hard time at the moment, you just have to let him be - & give your support when he needs it.

    Best of

    Marianne

  • Hi  

    It’s sad for sure and you must miss the way things used to be . Different set of circumstances for me but I do feel for you .

    Sometimes the only thing you can do in difficult days is to do what is required of you today . A patient once told me to keep your head where your body is and not allow your mind to go to the saddest outcomes all the time . It’s far from perfect but for me it helps me find a footing to handle life when it feels too full of uncertainty.

    He has his own sadness and the physical aspects of disease and treatment. I can fully understand why he doesn’t have much left over after enduring all of that . 

    However we are here for you and happy to chat .

    Court 

    Helpline Number 0808 808 0000

  • Thank you so much everyone!  I supposed I answered my own question when I asked. I do get what he is going through and were the shoe on the other foot, I don't know how it would go. He always says I'm `the strong one and brains of the operation` but sometimes I really doubt that. I just feel so sad and empty at times that he can be so `cold` now but I know as you are all saying it will be his way of dealing with things and processing as to what is happening to him. Maybe one day he'll `come back to me`. Thanks.

    Vicky xx

  • He is with you but he is a different person as everything changed for him, his plans, doing every day activities, future plans.You need to comfort him as much as you can to make the process easier for him.People usually get depressed when they cancer and loose their interest of understanding emotions of other people.

    Stay strong 

  • Thank You Ghaz!

    I just feel that I am more of his carer now than his wife. I know he can do things for himself he's just gone to have a shower, and in the mornings, he gets up and makes himself something to eat but as soon as I get up it's `can you get me this` `get me that` and I feel he doesn't appreciate what I do for him and I'm just there at his `beck and call` and hardly shows any affection at all. 

    Vicky x

  • Hi Vicki,

    Away and pour yourself a large wine. You are there for Jay but need to be there for you. 

    Jay is obviously just consumed by his diagnosis. With cancer sometimes you don’t feel like eating that’s Normal. He will eat when he’s hungry. 

    Hope that wines poured.  Wine glassChristmas treexx

    Cath

  • Still got the big bottle of Prosecco from my birthday Cath!Blush. Still trying to get an extra looooong straw to fit inside the bottle so I can sup it in one goSweat smileSweat smile xx

  • Cath you sounded just like my dad there!! with you're `away n pour yourself a wine` One of my dad's favourite sayings was `Away ye go ya mug ye` and I just heard him when you said that. Weird!Open mouth.

  • Hi Vicki,

    Oh thats spooky. I hope you’ve found your big straw and opened that Prosecco ChampagneChampagne glassxxChristmas tree

    Cath