Well the timing is awful but after having a LAR August 21 for Bowel cancer then reversed September 2nd , blocking November 8th. Yearly CT scan showed lung nodules the results are I’m now seeing a lung specialist!
To say I’m not happy is an understatement
To he honest I think I will consider following this up I’ve had enough treatment it’s been amazing but what with my husbands three consultants and my now two, there’s not much time left for life!
Not sure why I’m putting this up but it helps me to release it here rather than my family
Thanks so much Faloola
Crohns is a terrible disease to cope with. That must have made you realise the good days. I worked with a little one that had it and it’s rotten.
keep booking those breaks.
I’ve arranged for a breakfast meeting tomorrow. I’ll have the tests and my hubby and bro can have a breakfast, I’ll pop into them afterwards. Then my bro will have to go to the airport to get his flight to Spain and my hubby and I can go for the diagnosis.I feel that’s making the most of a difficult scenario
Least we are making the most of Bristol and being together x
Ann
Hi Faloola
I said quite some time ago to my consultant I would never be seeking a prognosis, and she must never offer one. I didn’t want to have a clock ticking over me when it’s only a best guess on their part. She was fine with that, and I’ve always found her very encouraging and as positive as she can be about my situation. That’s good enough for me! Like you, I want to focus on living and doing as much as I can while I am able to.
I want to see my eldest daughter get married next summer, and I want to see grandchildren. I will do all I can in my power to achieve that, although ultimately what will be will be. But I keep positive that I will be the mother of the bride zipping round on my mobility scooter!
You’ve clearly made the most of your extra years, and continue to squeeze every drop of life out of your time now. That’s pretty inspirational for others to read, and such an encouragement. I think you’d be such a fun grandma too!
Sarah xx
Hope your consultant session went well today. Sending extra virtual hug full of positivity 
Mindset has always been an important thing for me Cath. I could choose to be miserable and pessimistic and curl up and wait for bad things, or I could choose to find good and positive things to experience and look for- even small moments of joy in every day. I know what my choice is!
If someone had told me 3 years ago I would get to the Maldives I would not have thought it possible, but I did it this year. For me with 2 stomas and all the rest of my issues it’s about looking at how I can achieve what I want to do by looking for ways round the obstacles my condition can put in front of me, not assuming they will cause me to fail.
I’ll look forward to following your shenanigans when you travel up to Scotland!
Sarah xx
It’s been a long day. Lung tests was about thirty minutes I flew those then we waited to 1.30 for the consultation and nurse meeting which was an hour
Now sat with my feet up. It’s both lungs and there’s many small ones the two largest are only 1cm. They want to try a new investigation. Navigation bronchoscopy under a GA. They’re going to try and get a biopsy to then diagnose and the MDT will discuss any treatments. No operation viable. It may be Chemo
They said that it’s not from the bowel so that is interesting.
Before getting their new diagnostic equipment they would have just CT and measured the growth
So I am now in the processing mode.
Another MDT that’s two in the same building both meet Fridays though it’s now through teams
What a day xxx
Thank you so much for all of your well wishes
Ann
