Back Down To Earth With A Thump!

Hi PattyK,

Its great news they are going to give it another try with some treatment. I think once on a PICC line would be in for the duration of treatment would be better than trying to get a canula in every time you go. 

I don’t suppose one would ever be at ease with having cancer but anything they are doing to try treat or help symptoms is a good thing I think. 

Just try and take any positive you can out of a s**t situation I know that’s what I do although I realise we are not all the same and it’s a hard road to walk. 

Hi Vicky. The picc line doesn’t dangle out of your arm. It’s like a canula on a bit of thin tubing but they sort of fold it up and stick it down then put a covering over it so it is well secure. I wore a piece of elasticated bandage over mine as well and then just normal clothing. As I wore a black uniform to work my mum made me a black cover but it did not seem appropriate to wear what looked like a black armband to the wedding that we went to during my treatment - although it seems to have been an accurate prediction now! 
He won’t be able to play golf or tennis which I’m sure he’ll be gutted about! Ask for a prescriptions for a limbo arm cover to keep it dry in the shower - it’s a plastic sleeve with a rubber seal at each end to pull up over the line so it doesn’t get wet.

Yes it’s a rollercoaster of emotions but please try and keep those positive pants pulled up - Jay sounds to be doing a bit better so focus on those little steps and try to help keep his good mood up there. Will the chemo work? I don’t know but you’ve got to give it a try - there’s been some really positive posts on here lately where people have had a great response to chemo. 

Keep posting and ringing the support line when you’re struggling - we’ve all got yours and Jays back

Take care

Karen x

Thanks Cath!

Just been up in the loft and brought down some decorations not a lot though usually go overboard but just not feeling this year but thought I would try and at least make an effort. Just going to have some lunch then maybe put some up later. Just a few bits of tinsel a small tree and some window transfers usually got the whole shebang with flashing lights etc got a few but battery operated will be a bit of a faff having to change them every so often but `hey-ho` saves trying to get electric extension flexes to lead them over to windows etc. Maybe once they're up i'll feel different. Take care. 

Vicky xx

Thanks Karen. 

Yes, we all need `positive pants` I think. Wonder where you buy them?. I've got the decorations down- well some of them as I've said to Faloola and will put those up later maybe cheer us up a wee bit. Just need to try to keep going. Thanks. 

Vicky xx

Hi Vicky,

Great stuff it’s really hard I know this from personal experience, but as I said I would rather just go with the flow. 

All mines have been up since November lol looks like Santa's grotto but I do have 4 granddaughters who have never been out of my house having sleepovers but that’s the norm here lol. 

Ive had my Ct scan and oncology appointment on the 16th. Will see what they say then. Xx

That's Jay's first chemo session Cath so we can compare notes

It's ok Karen he doesn't play golf or tennis so we're ok there. No just want this to work this time and I'm hoping and praying it does. I've read some good things about 5FU and some not so good but then I have been looking at googlewhich do show some of the information being dated from 7/8 years ago so hopefully its come on since then. He is getting it along with Ineterocan? is that how you say it?? so many strange names for these drugs. Some say there can be significant shrinkage in tumours with the 5FU but it seems it needs to be combined with some other drug to do this and may not work on it's own. May not get rid of the tumours completely but can give a result of shrinkage so hoping for this to happen. 

Vicky x