Hi family
I am to start Folcirinox for 3 months, every 2nd week, taking home a Chemo bag for an additional 72 hours
Then onto radiation and Chemo tabs for 5and a half weeks.
And then on to surgery if the tumours have shrunk.
Is there anyone out there on the same journey if so I would love to hear how you are handling the Chemo?
Also is there anyone out there that did the Chemo and radiation and said no to the operation (as I am leaning this way as I am petrified)
Love to you all and happy healing
Dear TJF
I have the same issue. Same path as you.
Just had the op. The tumour even when necrotic and shrunken was malignant even when no PET fdg signal emitted. Same with the other stuff.
So the op. Is an insurance where you get to claim and the car is not written off. A bonus in short.
It's just a blur at the start but you will meet lots of brave punters on your race.
Hi TJ
Kind of you to ask.
Keeping occupied by reading the autobiography of Charlie Chaplin and biographies of him and Cary Grant. Footie and restarts of Rugby have been a blessing as well.
I realise that you are very apprehensive about the Surgery but listen to this story.
The 7th floor of the Tower at UCLH is chokka with stoma patients. Its bread and butter Surgery with a minibus of Professors and Registrars flitting about. Its major surgery but not innovative. Put your mind at ease.
The most amusing thing was my neighbouring fellow patient hopping in my bed when i got up.for a pee at 3am. Lovely chap who took a strong sleeping pill and did not know what was up or down. Never met anyone so wonderfully egocentric on my life
As for me...its been 3.5 weeks so far of recovery .It will take another 4.5 weeks to return to semi normality. Meantime I go.on busses shopping and doing breathing exercises on the journey.
If you are offered surgery thst means that your Team beleive you are worth the very considerable investment. They will.have calculated the risk of a SAE and the damage to their careers and the Hospital were one to.be incurred and deemed it acceptable for themselves and hence for you.
When you are raddled with cancer you have to accept your fate and grasp any opportunity to survive. There is nothing to be afraid of at least we will not die with dementia. Plan your meals, exercise, do what you enjoy insofar as able. That's how to make it to your operation.
I realise i am sermonising . When you look back in 12 months you will wonder why it worried you at all.
Stay Frosty
I am super chuffed you are doing better, step by step, keep pushing on.
Did they do your grion area too? There is so little skin there, if they did, I hope the skin graft is healing nicely.
Thanks for the passage I totally get it and totally agree, it's a big investment and by the team saying they can operate ,that means there is huge hope.
It's my inner fear, both my parents had cancer and both passed shortly after surgery so I think my fear is through my losses but I will go through it all to get to the other side.
Thank you Anthony, happy healing
Thank you TJ
I think that depending on where your tumour is located they sew ip your bum or groin..back or front.
The surgeon stapled from groin to above belly button. Its a super ugly bad job...but who cares? No mesh.. i'm 66 and no oil painting so it all matches.
My recommendation for you is to take up qui gong exercises. 8 brocades ..see youtube..will give you a strong abdominal wall. A few hundred million Chinese can"t be wrong...hopefully.
Good luck on the chemo. Plenty of protein sources will help.your bloods.
Let us know how you get on
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