So, Had Willam and Nicole at our house today just to keep them in the picture as to what is happening with Jay. William seemed really calm again and that really worries me, but he seemed to take it ok. We just said we don't actually know how it's going to go and its possible his dad might still be here this time next year. Have to now sell our beloved caravan that will have to go unfortunately. It's breaking our heart having to do that because it's in such a beautiful spot and we have been spoiled with the pitch we have. You need a car to get to where it is, and I can't drive so it's hopeless keeping it on. William and Nicole don't want it- not their scene, I think. Had so many visions of taking the wee one over there for holidays this was one of Jay's goals when she got up a bit. She's 2 years old now so at a good age. It may come to it that he won't be able to drive himself, so he's arranged as well for William to take our car when that time comes. He has his own can which he has out on the PCP programme so Jay has said to him to hand it back and take ours but not at this moment in time because we need it. Just feels so surreal now that we are putting all these things into place and more or less watching all our hopes and dreams slip away. It's true what they say you just don't know what you've got til it's gone. I am just hoping and praying that they will be able to give him this new form of chemo and it will work for him. They don't know if they can and will only do it if they think he is fit enough to do it. William said to him today as I have said he should try to get himself up and moving instead of sitting in a chair all day and get outside but Jay keeps saying `he can't` but I've seen him get up and go into the kitchen to make himself a cup of tea go to the bathroom etc and he can still get in and out of bed. I don't know if he really can't.or he has just given up already.
Vicky x
Hi Vicky,
How things can change in a matter of days. Sounds like he’s just fed up he maybe can’t do the things he used to do and his energy levels are low.,
Everyones journey I suppose is different and everyone’s body is different. And everyone’s cancer is at a different stage.
I’m not even on any treatment as I’ve mentioned before. My husband asked me does this not worry me that they are not offering any treatment because it’s maybe to far gone. I’ve said to him that I’m not whatever will be will be and as long as I’ve got breath in my body I will continue on doing the things I love as long as I can.
You are both in my thoughts Vicky xx
Cath
Think so Cath!
When his hair grows it grows like a loo brush and he knows himself when he needs it done. Hasn't even bothered to ask me to do it as when it started to grow over his ears slightly, he usually keeps nagging me to do it for him with the clippers as it annoys him. He invested in a set of those during lockdown and was doing it himself and just kept doing that way and now, just seems he can't be bothered. Maybe once he gets this counselling done, he'll be better. I realy do hope so. On the upside though had an email from the housing office and the girl said they have gone over my application, and everything seems fine and shouldn't be long before it goes into the banding for `Health and Disability` to be assessed so that's a step in the right direction I suppose. Take Care
Vicky x
Hi Vicky ,
Fingers crossed when he goes to counselling it will help and then you will feel better as well as both of you are on the journey all be it a different one.
No one knows until they are going through it what it feels like.
Sorry about your caravan,
Good news about your application xx
Cath
That's the position I'm in Faloola and I find something to make me happy every day. Grandchildren, Daughters, Nature, Friends there is so much and I take each day as it comes. I concentrate on my lovely little world. News and politics do not play a part.
Thinking of everyone and what you are all going through and sending my support and love.
Ali x
Hi Kettleson,
Well I’m exactly the same I have my daughter and son and 4 lovely granddaughters we did have 5 granddaughters but lost one during covid.
I had cancer 10 years ago and it’s back with a vengeance. I’ve not asked for a prognosis as I think I might dwell on it so I just live everyday and get out and do as much as I can for as long as I can. I do know it’s inoperable and not curable and I’m on no treatment.
Going on a 3 days Christmas break with my daughter and my granddaughter. Been doing this with my daughter since she was 18 every year and she’s now 38 and have been bringing my granddaughter since she was born and she’s 9 now.
I put up all my Christmas decs yesterday and felt shattered lol. Xx
Cath
I just wish now Jay didn't ask for a prognosis because now unlike you Cath he's started to dwell on it and I honestly think this is what's wrong with him. The oncologist said to him 9-12 months but he doesn't know that- nobody does! The specialists just give an estimate I think and its up to the individual if they have got the fight in them like you Cath to battle it head on. I just hope Jay can turn this around and begin to see that there is some fight there. Take Care.
Vicky x
Hi Vicky
I have a caravan in Norfolk and this has helped me to cope with my own journey as I just love the beach and the sunsets (and sitting with a G and T on my decking!)
I wish I could help with Jay and his resignation as I believe the body and mind are capable of so much
Coming to terms with cancer is so difficult but what a shame he can't find the strength to focus on his Grandchild and how she would love to run on the beach with grandad just like I used to with mine.
My thoughts and prayers are with you
Richard
Hi PattyK
The physio advised my mum to set a goal for each day . That’s what we have adopted . Not always easy but it gives us a focus ,
Mum has never accepted a prognosis. She is taking it a day at a time . Two neighbours recently have told me how their parents have been told they have a secondary spread but have just got on with living life . Seems to be doing ok with their quality of life .
Right now it’s more grief that’s taking hold but I just feel dad always tried his best and to honour him we are trying too .
Thinking of you both ,
Court
Helpline Number 0808 808 0000
Hi Vicky,
I hope Jay gets something from the counsellor. I truly believe I am my own statistic. 10 yeas ago I was given a 50% chance of surviving 5 years 10 years on I’m still here. Yes it’s came back with a vengeance. I don’t want a prognosis I’m my own statistic and unless you’re a fortune teller no one knows. There’s a 14% chance someone in my situation will be here in 5 years well I might be in that 14%.
He can’t give up and you won’t let him it’s one day at a time Vicky. I’m only terminal when I’m not breathing. Xx
Cath
Thank you, Richard. I really hope as I said he can turn this around but I don't know. I don't want to give up the caravan I still think it would be good for us in the long run. But we'll see. Thanks for your thoughts.
Vicky x
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