Ok everyone, so we went to Jay's oncology appointment today and unfortunately, it wasn't the news we wanted. We thought we were going to find out about him getting his stent or nephostromy fitted but instead the registrar we seen had to go and bring in the head oncologist. They want to try him on the 5FU i've heard you all speak about. It involves the use of a PICC line and a pump. They don't actually know if it will work, and it will depend on Jay's energy levels if they think he can tolerate it. If they can't give him that there is nothing else, they can give him, and it will be a waiting game. He was given a prognosis of 9-12 months but again the oncologist can't say that for definite and was choosing his words very carefully. So he's now talking about `getting things in order` I'm trying to get us a move to a low-down house somewhere at least because I just cannot be here when he goes and for the fact it may give him a bit of quality of life if that happens meaning he can at least get outside as he is finding hard just now with us being in an upper flat with stairs. I have applied to social services and have been put on a list. Although we own our house, we don't think we could afford to buy another house a house prices have risen so much and even with the sale of this we would still need a mortgage so best just to sell it and have nest egg and if it means paying rent then so be it. Take Care All
Vicky x
