Cycle 12 results and feeling lost

Hi,

Don't waste a moment of your time. Get up get the makeup  on and the hair done and get out there, Try and think positive. Cancer is just horrible but don’t let the B.*****d get you down, 

You’ve got this ️

Oh Mizzle88. I am so sorry to read that . It’s such a disappointment. 
If I am reading this right it’s been effective apart from the liver . 
My mum has only ever used cap tablets with Oxaliplatin infusions and it did a number on the liver mets . Her oncologist gave her a six month break and used it again . It worked just as well the second year despite regrowth .

Is that the same combination ? The Oxaliplatin infusion she found tough but the tablets quite manageable.

I am so sorry to hear about your dad . That is such a sad time for your family. We had my own dads funeral last week and I miss him a lot .

Cancer has also sneaked back into mum ! They found it by accident when she was in hospital . Popped up in her lung and some lymph nodes . However she has not given it too much attention yet as there is so much going on . I guess the whole chronic condition really is a back and forward exercise .

But thirteen years of doing this I can honestly say the first two were the most intense for mum and the most scary . She did have an immediate recurrence which was such a bump on the road .

We will be keeping a close eye on your posts  as you knock this back down . 
Mum Is most certainly putting her best foot forward once again .

Much love to your mum too . A difficult time for the mums this Christmas.

Take special care ,

Court 

Hello court - yes it’s the duo of pills and chemo - my dad had the pills as part of GemCap for pancreatic cancer and the infusion as part of his folflox second line so have an idea on both but not together…I’m really hoping that it works and quickly as it’s so scary that the tumours can grow so quickly and so big.  The other treatment was working wonders on the other sites - ovary for example from 35 to 11 - which is huge.  Any advice on good liver health!?!?  I’ve stopped drinking but I’ll literally do anything to get healthy.

How long did the cold sensivty last after the infusion?  My dad was about 3 days but it was part of a different regime so unsure if it’s worse?  I’m so sorry to hear about your dad too…what is it with us and our daddies…god I miss him so much.  Our poor mums too….especially yours with a re-growth.  It’s comforting to hear someone else having an early re-occurrence - freaked me right out as thought it would be further down the line than the first cycle.  I suppose we just have to take every day as it comes and just keep fighting and keep positive.  

Treatment on the new one will start a week today - wish it was today but I know there’s paperwork and stuff to contend with.  Thank you as ever for replying…I’ve been locked away caring for dad for so long now I forgot how amazing this group is.  Glad to be back and will keep you posted.  Love to you and your mum during your grieving - and really hope they get on top of the resurgence!

take care…lou x

I do indeed…just need to lick my wounds for a day or so and reflect then I’ll be back fighting again.  Cancer can do one! Xx

Mizzle .So sorry about your dad.it must be such a hard time for you at the moment.

Hope the capox works for you..the side effects are so different for each individual.

You asked about cold sensitivity.I had it along with pins and needles and throat spasms for the two treatment weeks each cycle.but then a lovely free week when I could even eat ice cream.I made myself a calendar where I noted down any side effects and crossed off the days.

However some people dont seem to have any effects at all so its best to wait and see but to be aware then you dont panic when they occur

Hang in there

Kath

I am not sure if this is in a feature of bowel cancer in the liver but Mum’s were so fast growing it was frightening but her lung met took two years to get to 8 mm . The same body , the same disease . You could not make it up , however on her lung they said chemotherapy would not be as effective as it was so slow growing and chemotherapy works best on cells that grow quickly . Something to do with the rate of cell division . Whilst big they literally imploded away to nothing . 
I would not be at all surprised if her lung tumour has been there for years and just reaching two cm . I would also not be surprised if her oncologist watches it for a while to see what it does and get a feel for it . 
Same body different organs needing  different approaches. So take heart . Fast growing but responsive can still work . 

I have absolutely no idea if that’s just how my mum’s body works and others are completely different as I see people on the boards getting a great response in the lungs . But this is where the skill of the oncologist comes in and they get a good feel for their patients . 

I do miss my dad . He was always so bright and grateful . I know exactly what you mean and watching mum try and centre her world without him. Had my nieces over for tea with mum and the boys yesterday . All sitting round the table and it was bright and lots of chat . Then out the corner of my eye my tv had gone onto standby photos and there was a beautiful photo of dad . I takes your breath away .

The first twelve hours were the worst mum was affected in terms of sensitivity. She would have some soup and head to bed to sleep it off . This was the time of year she had it too so did look as though she was heading to the ski slopes most of the time . The wee white linen gloves did the trick . I would definitely get her a heated throw if she was doing it now just for a bit of spoiling . Although she had sensitivity after the first twelve hours it became more manageable. 

After that I would say colic symptoms were more of a problem . The second year she had her infusion reduced and what a difference it made . Only by a small amount too and she got the same results so keep in mind that it’s not always necessary to struggle on . 

You have had a great result on the ovary so take courage from that . I have absolutely no idea why the liver acts differently but it did for mum too .

I could see mum got knocked by these types of results . I hated it for her . However after a period of time I could see her rise again . She would say I will be ok once I have found my focus . Then she would set her eyes on the goal , mentally prepare for what was ahead and go forward . 

Do what you need to do . Grief is hard on it’s own but mum and I will be encouraging you every step of the way .

Best foot forward .

Court 

Thanks Katz51 good advice and greatly appreciated.  I noticed on the other treatment I was on it would vary week after week…some better than others!  I’ve already lost a lot of my hair and have split fingers and feet so can’t get much worse I’m sure haha!  Best foot forward and all that..appreciate your reply thank you x

court oh my I completely get the photos on the TV!  We had the same yesterday my daughter with me and my mum and it really does catch your breath!  It was so lovely to see him but broke my heart all at the same time…he deffo would have had a few more years in him if it wasn’t for the cancer - such a fit strong man…so missed.  Something we all have to come to terms with.  We find out today when the funeral will be so at least planning that will keep me busy.

I’ll get on Amazon for some cotton gloves - I’ll take my dads gloves I bought for him for getting things out of the fridge too as may as well put them to use.  My hands and body still battered by the last treatment and my hair mostly gone - a possible hope of re-growth but knowing. My luck I’ll be the one to go bald!  That’s what hats and wigs are for I suppose!  

I think I may be similar to your mum…now I have the treatment date for next week I have to now focus on that and being there for my babies (not that they are babies at 19 and 15!) and my wonderful husband who’s been my rock…considering after being together for 25 years my dad was his dad too!

Sending positive vibes to you…and your lovely mum.  Big hugs xx. Lou xx

There are some great wigs out there.on prescription too.And they keep you extra warm in the winter.win win I found.

I was one of the unlucky ones hair wise.

Kath

Cancer CAN!! do one Mizzle!!! My thoughts exactly!! Take Care 

Vicky xx