Feeling low

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Haven’t posted for a while. Told 2 weeks ago mri of liver unchanged but today told there was a discrepancy between mri & ct done 2 weeks later. Now drs think liver tumours have grown by 2cm. Have been on capiri for 2 years, since recurrence but initially diagnosed 4 years ago. Was managing ok but find it really stressful having 3 monthly scans & waiting for results. Now waiting for mdt meeting to decide which scan result is accurate, scary time. Told if tumours have grown will likely switch to capox. Told should not have same side effects as capiri which weren’t always pleasant but concerned about possible neuropathy from capox. Any helpful advice would be appreciated 

  • I’ve just been told I too am moving onto Capox - the pills are the ‘cap’ and the oxy the chemo - my dad had the oxy and as long as you take care for about 3 days with cold things such as drinks and getting things out of the fridge then should be ok.  They also say when you are in the unit make sure you keep your chest warm (wear a scarf/hat when you leave) and keep your mask on when first leaving really helps.  There is talk about cold therapy to help but I’ve not completed the research yet - bit like a cold cap but for your hands - it’s an American thing!  Think it’s more about managing it and taking care not to get cold….hope this helps some?  I just want to know if it’s successful for reducing liver tumours….need some good results to hang on to! 

  • Thanks for taking the time to reply. Finding it harder to deal with the fact that someone has reported the scan incorrectly. I was feeling really good about the initial results & the fact that the tumours were stable & had been for 6 months. Now to be told they were wrong is difficult. I have liver metastases which popped up a year after initial surgery to remove colon cancer. Then another year on was found to have peritoneal spread. In September I had a break from capiri & just continued with capecitabine to have a break from the side effects. I think this is probably the time that the tumours have started to grow again. Previously I had a good response to the chemo & my oncologist seems to think there should be no reason why I shouldn’t have a good response to the capox. Fingers crossed he’s right & hopefully the side effects won’t be too bad. I hope you get good results too. My oncologist has said that capox is not only good at keeping disease stable but is also known to reduce tumour size. This is an awful disease & it’s not always easy to stay positive although I do try. Take care & thanks again for your message.

  • I’m feeling your pain…I had liver mets shrink in the first 6 cycles to only double again in the next 6 on folfluri.  I’m so confused and scared but suppose we just have to keep positive…although how I don’t know.  Just have to pray they reduce tumour size and get rid of them…cancer can do one! Xx

  • Hi,

    Thats the spirit you’ve got this Feebird. 

    Cath

  • Your very welcome. Heart

    Cath

  • I know it’s hard but we absolutely have to stay positive & send this bugger on its way! The ups & downs play havoc on your emotions. I’m usually positive but every now & again I feel like it’s a struggle. We will beat this horrible disease one day, in the meantime stay strong. Purple heart