Hi.im new here and would love some help/views if anyone in similar delema
I had a right hemi colectomy 5 weeks ago which went well and am still slowly introducing different foods.
I'm getting so anxious now as I'm about to have chemo and have been offered 2 options
1. 3 months of oxaliplatin and capecitabine
2. 6 months of capecitabine
In my appointment I just said..lets get it done quickly and chose option 1..shorter period.
But now, I've had time to read up and oxaliplatin has so many more side effects. Dr had mentioned that but one of the worst I've read is neuropathy which can affect quality of life in a big way. Numb hands feet trouble walking..tripping over..pain and once its there possibly that it never goes away.
I phoned my colorectal nurse who said they only do 3 months now which is better...but it seems like a big gamble.
I'm thinking of changing to the 6 months of capecitabine, (tablets)
My question has anyone had either of these treatments.
Anxiety levels have hit the roof and cant focus on anything else. I'm d scared of starting any chemo anyway
I have to make my mind up quite soon as well
Please help if you can
Thanks x
Hi I had the adjuvant treatment the two together. I had 6 months treatment 10 years ago after a right hemi colectomy. I had stage 3 cancer. They lowered the dose of Oxaliplatin as I had throat spasms which I believe it’s a rare side effect. I personally would do it all again. But it is tempting just to take the tablet I can see the appeal, Do some research and you will make the right decision for you.
Good luck to you in your journey ahead.
Cath
Hi Cath
Thank you for your reply.
They now only do 3 months.
The throat thing scares me as I suffer from an anxiety disorder and I would be scared of a panic attack.
I've done so much research and still cant decide hence putting it out there to people who have had it.
I think maybe it's just the waiting as well..j
Maybe once it starts and ive made a decision it will be better.
In a way, I wish they hadnt let me make a decision
Thank you again for your input xx
Hi SP
Why stress yourself out? Treatment patterns on Capox. Are 14 days on 7 off . So not a lifetime
. Usually appts say 15 mins with Oncologists plus bloods between cycles..thats a structured opportunity to change. So if you have really bad side effects either
A.Stop altogether pro tem after chatting with the Emergency Advisers and then your Nurses and
B.Switch to central line and Folfox orJust
C. Xeloda...Capecitibine.
A friend of mine tried Capox. Switched to 2 and then to 3. That was her treatment plan. Mix and match.
It's your treatment. Your Oncologist will.want what is best suited to your needs. They will happily switch your treatment pattern.
None of this stuff is a bed of roses but it is better than a few visits to the dentist. Try and suck it up till.you can't. Keep that emergency number close by to give assurance.
Hi, your welcome.
I used to always have something warm to drink during the infusion it seemed to work and stopped it before it started.
Cath
Hi
Thanks for reply.
It's just I have an anxiety disorder which is so hard to control at the moment...but I never realised you could switch in between.its made me feel a lot better knowing I have some control.
I think once I start and stop thinking what ifs I will be ok and cope.
Thanks again for helping. Its good to hear from other people.
X
Hi Sugarplum,
Your welcome one day at a time you’ve got this.
Cath
Hi Sugarplum,
I’m always here for a chat. I no it’s difficult to get your head round it because I suppose your world has been turned upside down. But your stronger than you think. Just try and take one day at a time. Keep yourself busy. Bowel cancer is very treatable. It’s good it’s been found and now it can be treated.
You’ve got this. Think positive that’s always been my motto no matter what life throws at you.
Cath
Hi, I had a left Hemicolectomy in May '19, but was told I didn't need mop up chemo at that time. Unfortunately, in March '20, CT Scan showed a couple of Nodules in left lung....was then advised to have chemo to shrink them. Was offered the Oxyplatin & Capecitabine for 6mths. However, I declined the Oxy. (As an artist, I was wary of Neuropathy as a side effect.....& asked could I just have the Capecitabine Tabs. Oncologist was a bit taken aback, but agreed. I had the Tabs. for 5 mths....with no side effects, but then developed Parmar Plantar in hands & feet, & was taken off them.
However, the Tabs. alone shrunk the two small nodules in my lung, & I was able to have Lung Ablation in Oct. '20 (a small procedure.) that Zapped them.
Since then, my 6 mths. scans have been all clear.
Best wishes in your decision,
Marianne x
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