Which chemo to choose

FormerMember
FormerMember
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Hi.im new here and would  love  some help/views  if anyone in similar  delema 

I had a right hemi colectomy 5 weeks ago which  went well and am still  slowly  introducing  different foods.

I'm getting so anxious  now  as  I'm about to have chemo and have  been offered  2 options 

1. 3 months  of oxaliplatin and capecitabine 

2. 6 months  of  capecitabine 

In my appointment  I just said..lets  get it done quickly and chose  option  1..shorter period. 

But  now, I've had time to read up  and oxaliplatin  has so many more  side  effects. Dr had mentioned  that  but one of the worst I've read  is neuropathy  which can affect quality  of life in a big way. Numb hands  feet trouble  walking..tripping over..pain  and once its there  possibly  that  it never  goes  away. 

I phoned  my colorectal  nurse who said they  only do 3 months  now  which is better...but it seems like  a big gamble. 

I'm thinking of changing to the 6 months  of capecitabine, (tablets)

My question  has  anyone  had either  of these treatments.

Anxiety levels  have hit the  roof  and cant focus  on anything  else. I'm d scared  of starting any chemo  anyway Disappointed relieved

I have to make  my mind up quite  soon as well

Please help if you can

Thanks x

  • Hi I had the adjuvant treatment the two together. I had 6 months treatment 10 years ago after a right hemi colectomy. I had stage 3 cancer. They lowered the dose of Oxaliplatin as I had throat spasms which I believe it’s a rare side effect. I personally would do it all again. But it is tempting just to take the tablet I can see the appeal, Do some research and you will make the right decision for you. 


    Good luck to you in your journey ahead. 

    Cath

  • FormerMember
    FormerMember in reply to Faloola

    Hi  Cath

    Thank you for  your reply. 

    They  now  only  do 3 months. 

    The throat  thing scares  me as I suffer  from an anxiety  disorder and I would  be scared  of a panic  attack.

    I've done  so much research  and still cant decide hence putting it out there  to people  who have had it.

    I think maybe  it's just the  waiting  as well..j

    Maybe  once it starts and ive made  a decision  it will  be better.

    In a way,   I wish  they  hadnt let me make  a decision  

    Thank you again  for your input  xx

  • Hi SP

    Why stress yourself out? Treatment patterns on Capox. Are 14 days on 7 off . So not a lifetime

    . Usually appts say 15 mins with Oncologists plus bloods between cycles..thats a structured opportunity to change. So if you have really bad side effects either

    A.Stop altogether pro tem after chatting with the Emergency Advisers and then your Nurses and

    B.Switch to central line and Folfox orJust

    C. Xeloda...Capecitibine.

    A friend of mine tried Capox. Switched to 2 and then to 3. That was her treatment plan. Mix and match.

    It's your treatment. Your Oncologist will.want what is best suited to your needs. They will happily switch your treatment pattern.

    None of this stuff is a bed of roses but it is better than a few visits to the dentist. Try and suck it up till.you can't. Keep that emergency number close by to give assurance.

  • Hi, your welcome.

    I used to always have something warm to drink during the infusion it seemed to work and stopped it before it started. 

    Cath

  • FormerMember
    FormerMember in reply to Anthony

    Hi

    Thanks  for  reply.

    It's just I have an anxiety disorder  which is so hard to control  at the  moment...but I never  realised  you  could  switch in between.its made me  feel a lot better knowing  I have some  control.

    I think once I start and stop thinking  what ifs I will be ok and cope. 

    Thanks  again  for helping. Its good to hear from other  people. 

    X

  • FormerMember
    FormerMember in reply to Faloola

    Hi

    Thank  you  Cath for  that  tip.  I will definitely  take  it on board.

    Xxx

  • Hi Sugarplum,

    Your welcome one day at a time you’ve got this. 

    Cath

  • FormerMember
    FormerMember in reply to Faloola

    Thank you Cath for the  encouragement..I think  that's my problem  I'm going  way ahead of things...

    I'm just impatient  and want to get back to normal with no letters..appointments...blood tests...just life as before...

    Thank you xx

  • Hi Sugarplum,

    I’m always here for a chat. I no it’s difficult to get your head round it because I suppose your world has been turned upside down. But your stronger than you think. Just try and take one day at a time. Keep yourself busy. Bowel cancer is very treatable. It’s good it’s been found and now it can be treated. 

    You’ve got this. Think positive that’s always been my motto no matter what life throws at you. 

    Cath

  • Hi, I had a left Hemicolectomy in May '19, but was told I didn't need mop up chemo at that time. Unfortunately, in March '20, CT Scan showed a couple of Nodules in left lung....was then advised to have chemo to shrink them. Was offered the Oxyplatin & Capecitabine for 6mths. However, I declined the Oxy. (As an artist, I was wary of Neuropathy as a side effect.....& asked could I just have the Capecitabine Tabs. Oncologist was a bit taken aback, but agreed. I had the Tabs. for 5 mths....with no side effects, but then developed Parmar Plantar in hands & feet, & was taken off them.

    However, the Tabs. alone shrunk the two small nodules in my lung, & I was able to have Lung Ablation in Oct. '20 (a small procedure.) that Zapped them.

    Since then, my 6 mths. scans have been all clear.

    Best wishes in your decision,

    Marianne x