Surgery on Monday, feeling terrified what they'll find.

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On Monday I am having open surgery to remove the right sided tumour in my colon and lymph nodes. They are concerned about its proximity to my abdominal wall and whether I will have pre cancer cells in there. Can't help but think what if they were playing that part down and theres already cancer there. (Should not have googled colon cancer peritoneal mets). I've also got 2 dots on my liver which are indeterminate. The plan is for a liver specialist to come into surgery to take a look. Not sure if that's still the plan but hopefully it is. I'm trying to be positive but everytime I look at my children I have a feeling of panic that they'll have to grow up without me. 

At the same time as my colon resection Im having a mastectomy, to finish off my breast cancer treatment, with limited reconstruction options. They said they would discuss those if I wanted later on. They also said I might not think it necessary which was probably just a general comment, but my current frame of mind jumped to it not being necessary because I won't be here to need it.

I thought my over thinking brain had been pretty relaxed and logical but its taken a spiral down this last week. 

  • Hi 

    You have every right to feel a bit anxious . It’s a lot to process . However I think we all hang on and over interpreting the Drs words .

    It is quite common for two surgeons from different specialties to do the one operation . They schedule their diaries to be available for a block of time and go to do the necessary section and leave again . Vascular surgeons do this a lot too . 
    It is also very common for them to hedge comments to make sure you understand they can’t guarantee the scan image in its entirety. But that does not mean they won’t resect  the affected area even if that’s what they find . 

    My mum had a combined bowel and liver resection and did just fine after surgery . Is the mastectomy part of the same operation ?

    I would imagine the reconstruction comment would be more a case of if you would class it as a priority to have more surgery . Definitely not to be interpreted as not being around to have it . 

    Two small areas on a big liver is not a big tumour mutation burden . The scan is just an image and they reiterated all the time with my mum they may get in and margins are better than expected .

    One thing for sure surgeons are going in with an aggressive approach. That’s what they committed to do for my mum and it worked on those areas .

    Take the time you need . I will be looking out to hear how you got on .

    Take special care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi Chillypom

    I know what you mean about Dr Google I terrified myself too

    My mind went into overdrive when I was going through tests as my family were all having issues  my daughter lost her baby and my husband had symptoms of Parkinson’s  I thought I was going mad 

    Gosh you have a lot to think about I think I’d try to fill my time with things I could manage and people that are understanding and leave the medics to deal with the cancer 

    I imagine it’s better to have everything done at once though you’re going to be pretty sore after 

    I hope all goes well. 
    Im sending you a hug 

    Ann
     ‍Art

  • Hi Court

    Sorry its taken so long to reply. I've finally got all my apples back in the basket and I am coping a little better and wanted to say thank you.for replying.

    Both ops went well and im healing well too. My bowel surgeon said the tumour wasn't attached to my abdomen which is a relief, but there wasnt a liver specialist to check my liver which i was really disappointed about. Slowly getting used to having a missing boob, but that will take time too.

    Back to waiting for the histology results, time is going very slowly! 

    Hope you had a nice weekend, and hope your mum is doing alright.

  • So delighted to read this . I think you are definitely our forum first to have that combination of resections and it’s a lot to adjust to but it’s also your return to full wellness .

    They will keep a close eye on the liver and my mum actually found a single liver resection mum easier to recover from than her combined liver/bowel . The liver also has options like RDio frequency ablation which are a lot less invasive.

    I am just so delighted for you as I was really feeling it for you but like my mum you seem to be made of steel .

    Great news on the location of the bowel tumour . You and your surgeon would be pleased to discover that .

    I am sure you have one happy family just now . I hope you are getting some support to adjust to all of this though as it’s a lot . Have you considered the counselling option ?

    Take special care ,

    Court 

    Helpline Number 0808 808 0000