So, at the oncology appointment with Jay today and his 4th Chemo cycle starts tomorrow. Up with the larks again as it's an early one 8.30a.m. but he likes that being a morning person. Saw the head oncologist today and he seems quite pleased with Jay's progress in that he doesn't seem to be experiencing any adverse side effects just the tingling in the fingers and toes. His bloods have come back ok again the oncologist says his bloods are good and now we have the CT scan coming up a week today (Thursday 27th Oct) the oncologist says he will try and get the results of that back for Jay's next oncology appointment in 3 week's time because seemingly there is a backlog with CT reports coming back but he says he will do his best. So, so far so good and oh his weight has gone down again too he is now 133kg so that's a full kg he's lost and they're quite happy with his weight too so I'm getting the `fat jokes` from him now just because he's lost some weight
. Good we can laugh about it all just now though. Take Care.
Vicky xx
All sounding good PattyK and great that he’s feeling well enough to be a bit cheeky! 
X
Thanks Karen
Yes `cheeky` is his middle name. I would say something stronger but not appropriate on here
. Yes, we seem to come away feeling that little bit more encouraged when we see the oncologists because so far (touch wood) they have been giving us positive feedback and they seem quite happy with Jay's progress so far. Just this damn CT scan coming up next week. Getting good feedback from that would be the cherry on top of the cake. Take care.
Vicky xx
So, infusion 4 done and dusted. Bit of confusion though the nurses are telling Jay that this may be his last one. I and he always assumed that the norm was 6-8 cycles. He's still to take his 2 weeks of Capecitabine but they have been giving him a blood form and bag to take away with him too to make an appointment at the GP health centre to have bloods taken during his `down week` when he has no treatment. He has a CT scan this coming Thursday and the wee nurse said after about 3 or 4 cycles he gets a CT scan and then that is assessed as to whether any further chemo is needed or if something else gets done. The routine is that he gets his bloods done at the GP practice then see's the oncologist the next day and has his chemo infusion the day after that but for some reason they weren't giving him blood forms this time but when I asked, they gave him a form away with him in any case just in case he does need to have his bloods done. I've contacted the oncologist secretary anyway and she said she will get back to us to let us know. The oncologist doesn't work Fridays. Got a letter in the post too from his surgeon saying sorry she missed us last time we were at her clinic- September 9th just 10 days before Jay's first infusion guess the letter got lost in the post
just to say that his liver and kidney function and blood levels were normal, but CEA levels were elevated and happy he was starting chemotherapy. Phoned her secretary about that and she said not to worry it was only a `complimentary letter` because she had missed seeing Jay although she was there and because it was a really busy clinic that day one of her registrars had to see him. Going to be a hard week next week for us with the scan happening and the day before that he sees his stoma nurse, he got a bit embarrassed today because his bag actually burst while he was in the chair getting his infusion, so I helped him to the toilet, and he kept apologising to the nurses, and they told him not to bother about it and they do get that from time-to-time he didn't even bring a change of trousers with him and he was wearing shorts because the ward gets really warm and he doesn't like the heat a lot. So a bit of adventurous day
. Just hope next week goes ok for him. Take Care Everyone. Enjoy your weekend.
Vicky xx
