Just finishing my first 2 weeks of Capecirabine tablets, ever since Sunday, I have been cold particularly my feet. Is this a side affect of the tablets.
Hey Trish, sorry to hear you're suffering from painful side effects, hoping the pins and needles have calmed down a little now, I've just had round 3 of oxy and was concerned about the cumulative effect as round 2 was very different to round one but so far it's not been any worse but only day 3 post infusion so fingers crossed. I just wanted to add my comments to your thoughts on a picc line, I decided to go for it thinking infusions would be less painful however within 10 days of it being fitted I had developed a clot and now in top of everything else I have to inject my stomach every day for 3 months to break down the clot....wish I'd never had it done for the sake of a cannula once every 3 weeks...I know lots of people who swear by the picc line but do your research and check out the risks before you commit...best wishes for the rest of your treatment...good luck! X
Thank you so much for your reply. I'm sorry to hear you are now having to inject daily since having your PIIC line fitted. I remember doing that after my colon surgery for 28 days. Like you say, on top of everything else, definitely something you could do without!
I was supposed to get a call re having a PIIC line inserted but that didn't happen. As it takes a few weeks to organise, I guess I will have my next infusion in my right arm again. I have suffered phlebitis in both arms which has been very painful hence why I wanted the PIIC line inserted. I will see how third infusion goes before deciding. I still have the pins and needles and real soreness in my hands which has been awful so my oncologist has lowered my dosage by 25% I am sincerely hoping the pain will ease and I will have some good days before my next infusion. Otherwise I am feeling pretty well with good energy and appetite. I have to keep telling myself tomorrow will be better. I hate not being able to be independent and relying on others. What a challenging journey we are all on.
Sincerely wishing you and others well for the rest of your treatment.
Absolutely Trish one day at a time and one day closer to putting this behind us, hope the reduction in dosage helps, it is hard relying on others if you're used to your independence but if we can't ask for help now we never will...keep positive x
