Long wait.

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I was diagnosed many months ago with lower bowel cancer.  I had a course of radio/chemotherapy (May/June time) which meant I had to take two chemo tablets in the morning then go to the hospital for radiotherapy, then when I got home two more chemo tablets.  I had to do this every day (excluding weekends) for 5 weeks.  Got thought that and was told the radiotherapy stays in your body for many weeks.  When I went for a further colonoscopy they said the tumour had shrunk and they would operate to remove it.  Well, the consultant said it should be either September or first two weeks in October, I received a phone call to say it will now be November.   I told her that I am in so much pain I cannot wait that long, she explained that it could still be the radiotherapy working, but the pain is awful, its just like a dragging feeling in the rectum and pain in the stomach.  I do take pain killers and morphine does help, but I just feel I cannot go on like this.  She did get onto the consultant and he did understand how I felt and will try his best to get me in sooner.  I am sure I am not the only one that is suffering, but its all the waiting for something to get done.  I cannot eat much and weigh 8 stone when previously I weighed 10 stone.  I seem to have no appetite at all. 

Has anyone else had to wait this long? it just seems to go on and on.

  • Hi 

    I thought it was roughly six to eight weeks after radiotherapy finished but I could be wrong . It’s not fun to be in terrible pain until Nov .

    I would definitely phone our helpline staff to see the best way to go about getting help .

    Your GP should be able to assist you also .

    I think you might need to ask about how best to manage the pain aspect as you can’t do this part without professional input .

    I really feel for you .

    Court 

    Helpline Number 0808 808 0000

  • Thank you for your reply.  Unfortunately, I do not even know who my GP is in all this time I have never heard a thing from them.  My daughter has been wonderful, she gets on to the pharmacist, and they did prescribe codeine to be taken with Paracetamol, but they were useless, I also had Codeine Phosphate, but they did not make  lot of difference.  I do have some Morphine, that helps, but you cannot take too much of it.  In a way I am blessed as I have the support of lovely family and friends.  I have always tried to put others before myself, and it is now wonderful to receive so much love back, I think this and my faith upholds me when things are really tough.  Thank you once again for replying and hopefully I may hear something about getting an earlier appointment.

  • Just a thought, is it worth saying you could take a short notice cancellation?? That's if you are able to! I've found it a way of nicely queue jumping!!! Win, win. You get the op earlier and they fill the slot!!

  • That’s wonderful . You clearly have a good team around you but keep in communication with your team so they know to keep your name at the top of the list . That’s a great idea .

    Codeine and the bowel can be incredibly tricky as I am currently discovering with my mum .

    Take care and I hope you get a resolution soon .

    Court 

    Helpline Number 0808 808 0000