Clinic Appointment

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So, was at the hospital with Jay today for his follow up appointment with his surgeon who he didn't see but one of her registrars. He's been fine while on this treatment (Capox) but now I'm starting to worry again because they took blood from him today and the last time that happened when he saw the surgeon it showed up that his cancer was back. Now I'm worrying they'll find something else although the registrar said that all his blood tests have been fine. Everything has been good so far (touch wood) but i''m just wondering if I'm setting myself up for a fall again and somewhere down the line something is going to go wrong. I'm still staying `cautiously optimistic` and just recently I have began to relax a little bit more but now I'm going to worry again incase anything shows for the fact too that Jay has been showing now adverse side effects with his chemotherapy either apart from the finger neuropathy and feeling that little bit more tired, but they upped his Capecitabine dosage to 5 & 5 as he tolerated the first dose cycle so well so putting it down to that and I worry because he has no side effects if the treatment is working or maybe he is just going to be one of the lucky ones where he doesn't experience any ill effects. Just looking for some reassurance. Thanks.

Vicky x

Gemmary over 2 years ago

Oh, PattyK, it never seems to get any easier!! But try to have faith in your team, as they have Jays best interests at heart. I didn't have capox so can't comment. So sending you best wishes x

Kareno62 over 2 years ago

Hi PattyK. Yes the worry is always lurking isn’t it but every clear scan and blood test will hopefully push it a little further back each time. Please don’t judge the chemo by the volume of side effects - everyone is affected differently. I had the tingly hands and feet but apart from that I had very little sickness and carried on working 4 hours a day in my office job so I think we’re just the lucky ones

Glad to hear that he’s tolerating it well

Take care

Karen x

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court over 2 years ago

I don’t think it works like that in terms of side effects . Scans are the best tool for measuring efficiency.

Even the tumour markers can become a bit unreliable as chemo can affect them .

My mum always had her bloods checked .

Part of the course I think .

You are doing great . Anxiety comes in waves and no wonder . It’s a lot to go through .

Sometimes you just have to hold on tight for it to settle again . I always felt I went to the worst possible outcome when an anxiety surge came but when it settled my head was able to consider that it might actually be working .

Hope today is better .

Court

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PattyK over 2 years ago in reply to court

Thanks for your comments. I just hope I'm worrying over nothing. Jay has been feeling a bit down again but this another thing I've learned that comes in a pattern. He can be like this for a day or two and then his mood lifts I don't know if this is all part of the treatment or the tablets (he is on so many different tablets including his diabetes meds) that I don't know if that is the reason plus the nights are getting darker earlier and he always gets a bit down in the winter months too think its that SAD thing but never actually been diagnosed with that thing everyone gets a bit down in the winter months anyway when its shorter days and longer nights. Hopefully things will be ok though. Thanks again.

Vicky xx

Gemmary over 2 years ago in reply to PattyK

Hi, PattyK, I take sea kelp for SAD over the winter, needs a few weeks to take affect. But as Jay is on so much please run it by his team first! It contains trace amounts of iodine.

PattyK over 2 years ago in reply to Gemmary

Thanks Gemmary

Vicky x