Hi has anyone had experience of bowel cancer leading to peritoneal disease. I had bowel cancer stage 3 in 2019. It spread to my ovaries in 2021 and is now in my abdomen and I have been told it's stage 4 peritoneal disease with spots on liver. I am shocked by this news as I don't feel at all unwell. Not that I'm complaining about that. I have been offered more chemotherapy and will begin that soon. Till than I am just trying to adjust to this new situation.
https://www.christie.nhs.uk/patients-and-visitors/services/colorectal-and-peritoneal-oncology-centre
Hi Missymoo2
I am so sorry to hear this, I have no direct experience of this but have been following it for the past ten years since I noticed a prominent dr in America write a lot about it with a catchy name of Dr Sugarbabe or something along those lines . The other persons work I have noticed is Mr Jamie Murphy whose name seems to be mentioned a lot with the more complex surgeries on forums and people in the past have gone to him for second opinions from this forum . He does some of the Hipec surgery at Imperial hospital. I think there are a few other centres of excellence and I know Christie’s is too so have linked in their booklet at the top . Totally optional if you want to read this and timing is everything as it may include stats . You may already be at one of these centres but it can be helpful to link in with them if desired . But they seem to be more informed centres if you want more information.
Most people seem to go to chemotherapy first to stabilise their disease . There is a criteria for all surgery but some people achieve it after chemotherapy.
The liver is more familiar territory but like peritoneal spread they like to stabilise the area first and see what chemotherapy has achieved .
I used to communicate with a young man who went through treatment , had surgery , went on to have a family and the peritoneal disease remained resolved . He stopped posting which was a good thing .
You also might like to link in with some of the stage 4 groups via bowel cancer U.K. . They are pretty informed bunch on current practices .
Take care
Court
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