Fabulous news

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Hello, I have posted a few times on the site and had some great advice. It is always good to hear the positive stories.

My journey started October last year, colonoscopy found a large tumour in my rectum.On my husbands 60th birthday in November (mine too same day but 3 years younger) I had my CT scan, not the way we imagined his 60th.  Then I had an MRI  scan no spread but lymph nodes enlarged. My surgeon and oncologist decided to put me through the (RAPIDO ) short intensive course radiotherapy (5 days) followed by 3 months 6 cycles of oxalaplatin and 5fu ,that ended middle of May. I then had my surgery 9th August less than 3 weeks ago. The surgery was 7 hours long started keyhole but then had to do open, can't believe I was up out of bed the next day and home 6 days later. I was on the MDT meeting today and got the phone call , all cancer had been removed no lymph nodes or tissue showed any sigh of cancer cells so all clear no further treatment required, as you can imagine lots of happy tears.I an getting used to my stoma now (bubbles) as it makes lots of sounds, should be able to have a reversal 6- 12 months depending on waiting lists but the cancer is now in the bin and a can concentrate on my recovery.

Thank you again to all that are active on the sight it really has helped.

Julie

  • Hi Julie. 
    Wonderful news. You can both celebrate your birthdays this year you have two months to plan it 

    Bubbles is a great name.
    Mines called Whoopi If you want any tips with Bubbles the stoma support group here are really helpful. I had so many tips and encouragement. Eating out , flying abroad whoopi has allowed me to live life to the full 

    community.macmillan.org.uk/.../

    Ann
     ‍Art

  • Hello Artsie,

    I had a couple of leaks with bubbles when I first came out of hospital but have since been back to the stoma clinic, it wasn't anything I was doing wrong just my stoma a changed so much , the holes they cut for me were too big. They say it can take a couple of months before the stoma stops changing shape so am aware of it now. Its nice to know I can still have a glass of wine but a lot of foods now restricted. 

    Julie

  • Thank you. Have just read your post. My mom has had a few problems with her stoma and gets really upset. She was 87 on Wednesday. She is terrified to go out because of the sounds it makes. She is constantly apologising. This means I can tell her that others have the same.

    In addition congratulations on a positive story.

    Sally 

  • Hi. 
    The stoma takes at least six weeks to form mine was eight. 
    If you have any questions put them up on the Support group you will have so much advice and tips. I learned so much there. I found that by talking to others that had walked in my shoes so helpful 

    I can eat  most things now. Fish finger sandwiches white bread butter and mayo was my go to favourite early on. I’m now eating colourful salads small leaf. Cucumber seeds scooped out. I had burger and chips the other day. It does get easier. I’m a year on and Whoopi is great. Though she will be in hiding soon as I’m up for a reversal 

    Ann
     ‍Art

  • Hello Artsie,

    I am missing my fresh salads so it is good to hear I will eventually be able to have them. Great news about your reversal. It will be really interesting to hear all about your experiences with that one. Please keep us all informed.

    Best wishes 

    Julie

  • That’s great news x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • You will be able to eat anything really. It’s skins that are the problems. I  can eat nuts but don’t bother as it’s chew chew chew. Gives me jaw ache. The one thing I miss is sweetcorn. Now I loved that but most don’t 

    Ann
     ‍Art

  • Brilliant news. So please for you Slight smile

  • So happy for you .

    Hope you have a treat planned for enduring all you have come through .

    Take care ,

    Court 

    Helpline Number 0808 808 0000