Advice

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Hi friends, I know I am asking a lot of questions but you all have been so good for me , here are a few more.

1. When did you or should I say how long did it take for you to come out of a shock grieving phase when you first were told of the news. I want to ease my mind so it’s not weighing me down so much and I can have some clear focus. I’m struggling right now to even run an errand , not because I can’t physically do it just because I can’t get mind to get out of this funk.

2. Did anybody struggle with trying to find your new norm or worry about what that actually was going to look like? I am willing to do everything I can to get better but am just so worried when I start chemo I won’t have any type of a normality. I don’t want to always be sick , we’re any of you able to somewhat function on chemo if so could you participate at a good level.

3. Lastly, I can’t sleep. Do you feel your mind races or is on overdrive at night? So many thoughts run through my mind I struggle to fall asleep.

ok I think that is it for now. Thanks all hope your having a good day!

Mizzle88 over 2 years ago

1. For me, when the treatment started. Gave me focus. Remember take every day at a time, and if that’s not possible, half a day at a time. Be kind to yourself!

2. Of course - but very hard to worry about what you cannot control. Until you start the treatment you don’t know how you feel - I still have not googled anything to do with treatment as I really don’t want to know - I’ll deal with it if the symptoms arise So far, chemo has been ok apart from feeling ‘steroid exhaustion!’ - any other issue uou tell the nurses and they have something that will help. Just need to keep talking to your nurses if you feel unwell.

3. yes, struggled so o just started to see bedtime as a time to relax. I had to keep telling myself that there was nothing o could do in the moment but rest. I now sleep like a baby most of the time - only when my chemo sessions are past 4pm and the steroids keep me awake!

Hang on there - treatment will Start soon and you will soon get into a routine with it all. This in my opinion is the worse time just being in limbo. Having a plan and getting started things will feel more positive…xx

Artsie over 2 years ago

Hi Momof4 I’m sorry you’re struggling at the moment once the treatment plan starts you will have something to focus on.
As I said before I was straight to theatre so Chemo wasn’t an choice. But I did eat as healthy as I could. Food was difficult as I was blocking so I had protein drinks twice a day with three very smalll manageable meals. This gave me a boost and I exercised. This helped my mental health

Take care

Ann
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Momof4 over 2 years ago in reply to Mizzle88

Thanks so much you all are the best appreciate it all!

Momof4 over 2 years ago in reply to Artsie

Thank you so much ️

Artsie over 2 years ago in reply to Momof4

Hi Momof4

You take care and try to stay as healthy as possible.
I did have a few treats in between and still do.

Before my operation I thought about the things I used to really enjoy! So Cantonese Chicken and glass of wine. So before I had to take the bowel prep I had just that. I so enjoyed it. So special. I could only eat half but it was delicious.
So I’d make sure you have little things you enjoy now. Whatever gives you joy go for it.
Try and put the treatment and diagnosis to the back and bring things you like to the front.
Let the experts sort out your diagnosis.

Ann
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Momof4 over 2 years ago in reply to Artsie

Artsie you always give me such a peace of mind. ️️

Artsie over 2 years ago in reply to Momof4

Keep plodding on grabbing the bits you enjoy and forget the bits you don’t

Best way forward

Do something you like tomorrow

Ann
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