Cautiously Optimistic

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Hi Everyone!

So today was the big day that my husband James and I had to go to see the oncologist re his recurrant bowel cancer diagnosis. I feel that a 10 ton weight has been lifted from my shoulders today. The oncologist said that James is looking very well!  and a whole lot different from what he saw of him back in February not long after his operation (meaning in a good way). He's lost weight but the oncologist said he is not underweight. He's lost about a stone between May and now. The oncologist went on to ask what we were told at the surgeon's appoint to tell us about the cancer coming back and it seems what he told us was different to what she said. She told us that the cancer was in his stomach lining and he told us it was in the membranes of his bowel whether that's one and the same I don't know. He also said it's a strange case that it's there and it was really hard to actually be able to see it. It is there though but maybe not as extensive as we though. He said there was really nothing showing in his pelvis but what he thinks was picked up there was the remains or scarring from an infection. When he was in getting his operation he took an infection down there and they put a drain in to get whatever it was out I remember he was in slightly longer after his operation I remember because they had to do this. He also has some scarring on his kidneys due to the operation but his kidney function is fine. What he did say though they are going to treat what is there with combined chemotherapy of Oxaliplatin and Capecitabine. It may not get rid of the cancer completely he said but it will hopefully shrink it right down. So he gets this part drip form where he goes to day surgery at hospital and part medication (tablets). The Capecitabine he has had before he got this before his operation and he tolerated it well but the oncologist said the dosage he gets this time will be slightly stronger. He more or less said because of the extent of the cancer and where it is and because he is suffering at present no ill effects, that he feels they don't need to start treatment immediately and that sometimes this may tend to backfire and a person who is well and tolerating the cancer suddenly becomes ill with severe side effects once starting it. We have 3 weeks before we see him again to make a decision of what we want to do and inbetween that time he will be trying to get an appointment with a neurosurgeon to hopefully do something about his kidneys. We're definitely going to do it and hopefully the benefits will outweigh the side effects. If he's going to get a good quality of life we are going to go for it! If it means popping a couple of pills and getting a drip put in your arm for a couple of months that's nothing but hopefully it will get a result maybe not the result we want  but hopefully something. So I'm thinking as they say up here in Glasgow `A wee hauf` (drink) will be being consumed at the weekend now we know they are going to treat it.

  • That sounds pretty optimistic to me too  and it’s good to hear that you’re in a better place too. Oxaliplatin and capecitabine is a really common treatment after surgery so there’s lots of advice on here. I’ll link you into a post about it nearer the time if you remind me?

    Anyway chin chin and enjoy your wee hauf this weekend!

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thanks Karen!

    Yes we are both so much in a better place today. We have actually laughed which is something we haven't done a lot of in the last couple of weeks. Just not need to get too complacent this time with the treatment (our cautious optimism). I think that's what happened the first time when they said it had all gone never gave it a second thought of it coming back. He tolerated the Capecitabine well the last time but as the oncologist said this dosage he gets will be that bit stronger. He gave us some reading material away with us on the effects both drugs can have. James wasn't even sick on the Capecitabine but don't know how he'll go this time. Anything's worth a shot if it's going to benefit him.

    Vicky x

  • That’s great news  it’s so helpful to get that plan in place .

    Same combination as my mum .

    https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/bowel-colon-rectum-cancer-forum/221768/chemo-care-top-tips--
    Some good tips on this thread for preparing for old Oxaliplatin!

    Hope you enjoy your “ wee haul” Grinning

    take care ,

    Court

    Helpline Number 0808 808 0000

  • Thanks Court!

    And thanks for the link for the cancer `checklist`. Yes I certainly will enjoy my `wee hauf` or `swally` as they say up here as well. A wee pink gin or 3 should go down nicelyWink.

  • So, James got one of those `hospital letters on a Saturday` today. I really don't like getting these letters on a Saturday as they tend to f**k up your weekend and beyond as we already found out getting the letter re his cancer coming back. This letter is for a telephone consultation with a urologist next month (August) we are assuming that this is to do with the scarring the oncologist told us about on James's kidneys as he said at the appointment on Thursday he would arrange this so they're not hanging about it seems. Still remaining `cautiously optimistic` and still having that wee pink gin later on.Blush.