Hi everyone
Unfortunately, my hubby is now stage 4, after being NED from 3C Rectal, for just over a year. He now has a 13cm mass in the lower right lobe of his Liver. The surgeons wants him to have Chemo, to shrink the tumour, before they will do surgery.
His Oncologist wants him to get a PICC line on Wednesday, and do 4 cycles of Folfiri with Panitumumab. He will bring a pump home for 2 days. He has done Xeloda and Capox pre and post APR surgery, and he did very well on them with very few side effects.
Can someone please tell me their experiences and side effects with Folfiri with Panitumumab, using a PICC line?
He was feeling great, with no symptoms at all. Now we are both just floored, depressed and angry, with this new diagnosis.
TIA
Sue
Hi SuzieQ1966
I am so sorry to see you back here under the circumstances. I will tag in Star74 as I think she has some better insight regarding that particular chemo combo !
Horrible to watch someone you care for having more to go through when they were making such good progress . However sounds operable and hopefully this will be the last . Just to encourage him my mum has remained clear in her liver since 2010 ! Surgeons did a fantastic job . Not easy but in the long run she has had a great life post surgery .
It takes time to find your feet after a recurrence but a lot of treatment options still for bowel cancer patients .
Send him my very best and I will keep an eye out to see how he is getting on .
Take care ,
Court
Helpline Number 0808 808 0000
Hi SuzieQ1966, sorry to hear of your husbands set back, must be such a blow after being NED for a year. However, it is good news that it will be operable after some treatment. I had the same combo (with cetuximab which is similar to pani) I had 12 cycles and found it quite manageable, as it is cumulative, my skin didn't really suffer until the later stages. I didn't have a PICC line though, I have a portacath. I was prescribed moisturiser and also had antibiotics to take every day and I could increase the dose if I had an outbreak. The pump is fine once you get used to it, they gave me a bumbag to keep it in and the district nurse came out after 48 hours to detach it.
As your husband done well with the previous regimes, I'm sure he will find this one manageable, I found it much easier than my other combo. Make sure he is careful in the sun, wear sun block and plenty of moisturiser.
All the best,
Michelle
Thank you so much Michelle
This give me some relief!
He does have a prescription for an antibiotic and a cream that we have to pick up yet. We do have homecare set up to come to the house, to disconnect the pump.
The only side effect that I am really worried about is this rash. What moisturizer are you using? The oncology nurse told us to use Aveeno.
Thanks again
Sue
No problem Sue, just ask anything. Try not to worry too much about the rash, some people get nothing at all. Mine wasn't too bad until the end after a build up of cycles, it certainly wasn't bad at all after the first 6 or so. In the beginning I just got a bit of dry skin for the first week and then it went back to normal in the second week, some people get spots, some get a red rash. Aveeno is good, I used to have one upstairs and one downstairs and just slapped it on my face and neck frequently.
I will add though, it done an excellent job at shrinking my multiple tumours!xx
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