Hello all. I'm about to start XELOX (CAPOX) chemo and would like to know what tiredness people experience after the Oxaliplatin injection so that I can build up a picture of what range of tiredness & duration to expect please?
I'm in my 40's and the reason I ask is I'm planning to go to a festival during the chemo (the Dr gave me the go ahead, and I'll do everything to make t happen) and I'm trying to gauge how tired I will be feeling on the 4th cycle so that I'm a little bit more aware of what to expect. Obviously I'm planning to be a lot less active, possibly sleeping midday and avoiding standing around in crowds etc. I have a number of things in place to support me during the festival but I just want to build up a picture of the tiredness experience by others that have gone through the same treatment please.
Thank you.
Hi MrPositivity , I’ll be honest I was very tired and hardly had the energy to do much at all . I also felt very sick . I think I was very unlucky . There are a lot of people here who have found it managable and go go about their daily business . I guess the only advice I can give is keep on top of anti sickness tablets if your feeling sick and take it easy . It sounds like you’ve got everything in place for when you go which is great . I guess you’re not going to know how you are going to feel until your first cycle . I really hope all goes well and you have an amazing time away ,
take care , Nelly X
Hi MrPositivity, Is this mop up chemo after an operation? I think how you are going to feel on the fourth cycle may depend on how you manage the first couple and what strength you are having. I had four cycles, had a kip most days for half an hour but felt reasonably ok. After the second cycle I was tired, didn't want to eat and so on. The oncologist reduced the dose of both ingredients for the next two and I improved. As soon as the fourth one had finished we went away on holiday and I felt mostly ok after that.
Best of luck with it. John
Hey MrPositivity I'm 11 days into my capox treatment. Tues 1st marxh was my first infusion. My experience so far is I was for nothing the first week. I've picked up this week around Wednesday. Almost every morning I've had nausea but it hasn't been too bad. The anti sickness tablets they gave me left me with serious hiccups. Hours solid to the point where I stopped them after 3/4 days. The worst for me is the way the cold affects my hands and throat. Anything cold leaves my fingers instantly pins and needles and feels like I'm swallowing glass. It has eased slightly but still very noticeable.
Thank you NellyB crankshaft and JM84 it's really helping to build a picture. My chemo is post operation to remove Type 3 colon cancer (spread to 7/44 local nodes and local blood vessels). I really appreciate everyone sharing their experience with me.
Very similar to me . What ever side effects you get make sure you keep a note of it . You should get a phone call from your oncology team at the end of each cycle and if you are really struggling with anything they can lower your dose . You can even call them when ever you want if your worried about anything . I phoned them quite a bit lol . The good thing is that it’s only 4 cycles and it’ll be over before you know it . Take care , Nelly X
Hi Mr Positivity.
I have just come on the forum to ask exactly the same question . I am also in my 40’s (early), and due to start the same treatment in a couple of weeks ( 4 x sessions over 3 months) , but post op. Hope you don’t mind me jumping on your feed for information
thanks
Nic
My chemo plan is Xelox 3 weekly up to 8 cycles, although the expectation is I won't make to the 8th cycle, which I believe is due to neuropathy risk vs benefit.
To be honest I don’t really know much about it all, I switched off when I was told
i thought I was all done after my op, so when I was told I need to go for further treatment my brain switched off
I think I am 1 session intravenous, then tablets for the rest of the cycle ( x 4 )
sorry if different to yours , sounded similar
Mine is 2h infusion followed by 2 weeks tablets, 1 week rest, and repeat. 4 cycles minimum and up to 8.
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