Hi everyone,
Have been going for tests over the last month after a referral to the Bowel clinic. Spoke with the consultant on Monday who told me that they believe I have colorectal cancer that looks like it has spread to the peritoneum in 3 places.
As I had a failed colonoscopy, they need to perform a biopsy on the peritoneum disease. I am just waiting for that appointment to come through.
I was completely shocked and not expecting this. Went home and told my wife and two children and although I need to wait for the result of my biopsy, the consultant and nurse seemed pretty certain that this was Stage 4 cancer.
I am trying to keep positive and active whilst I wait and have already found some comfort from reading posts on this board, so thought I should be brave and post myself.
The consultant mention that if the biopsy was positive, then I could be referred to a specialist centre for what he described as major surgery. Chemo was also mentioned and until I get my treatment plan, I do feel hopeless and looking for any signs of hope that this can be treated.
Grateful to have found this active board.
Hi Jumpin Jack
Welcome to the forum . So glad you found us . It’s such a shock to hear cancer has spread . If you click on my user name you can read the timeline of my mum’s journey through a stage 4 diagnosis. You are in the very hard aspect as it’s all very negative initially but once the oncologist gets a feel how you respond as an individual it can improve considerably.
I am going to see if process is around to share her husbands story with you as I think there was a similar spread which might give you more insight and encouragement.
Mr Jamie Murphy has a good leaflet on Hipec you might like to include in your reading .
Chemotherapy turned things around for my mum twice .
https://bowelcancerorguk.s3.amazonaws.com/Publications/TreatingAdvancedBowelCancer_BowelCancerUK.pdf
You also might like to read this booklet as it’s quite informative on how they treat stage 4 cancer and bowel cancer is quite fortunate to have quite a few options . My mum was diagnosed back in 2009 and she is not alone in responding to treatment .
The first post is very hard indeed but connecting with others can be very helpful , particularly in the early days . Not only does it reduce the sense of isolation but gives a lot of tips on how to navigate a difficult diagnosis.
One other pointer , watch the sources you go to on the internet . Some are very outdated , after five years in cancer care research can become outdated so always best to clarify everything through the oncologist. The NhS has some good advice also on specific treatments and obviously reliable and current . Some of us have terrified ourselves only to discover it’s a very old article .
Take care ,
Court
Helpline Number 0808 808 0000
Thank you so much for your reply. I will look forward to reading the information you have highlighted. It is nice to read some positive stories
Hi Jumpin Jack court tagged me in, thanks court. Where you are right now is a difficult place, you have been told possibles but nothing precise. Believe me once you have all the information and a treatment plan in place it will feel better. Now is the unknown. My husband was picked up by screening, he was diagnosed with rectal cancer and began a course of chemo and 5 weeks of radiotherapy. The treatment worked and he had a complete response or no cancer left. He was on watch and wait but had suspected spot on lung had tests and then it turned out not to be cancer but sarcoid like reaction. He then had surgery to remove potential regrowrh of tumour as cells had started to change. This was first week of lockdown. Unfortunately on a pet scan it picked up spots on peritoneum and surface of the liver he had 4 months of chemo then later in the year he had cytoreductive surgery at the Christie’s it’s a specialist surgery he did very well and recovered very well. At check up he was told he astonishingly response and no cancer cells were found and declared cancer free. He has just had another scan and we await results. So I hope it gives you hope. It’s a hard journey full of twists and turns but there are some fantastic treatments and skilled people. My advice now is just take one day at a time. No further ahead. Lots of lovely people on here to support you and second advise don’t Google a lot of out of date stuff. My best wishes to you .
Thank you Process for taking the time to respond to me, sharing your story and the advice. It is all very much appreciated
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