Capox Chemo

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Well hubby has the green light to start chemo on Monday..he is anxious to get started but the information pack is quite daunting..how did you all find the side effects of the infusion and then tablets..I have visions of us being housebound for the next six months.. do you think I will be OK to go to work a couple of days a week..any tips on coping with side effects...

  • If you put capox into the search bar lots of info and peoples various experiances come up.

    Alternatively click on any ones name(like my katz) and you can read bios.everyone is so so different it is hard to say one way or the other.

    All the best

    Kath

  • Hi . Yes chemo has a lot of side effects but he’d be very unlucky to get all of them. I’ve attached a link to a post that we started about chemo top tips

    https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/bowel-colon-rectum-cancer-forum/221768/chemo-care-top-tips--

    I found my arm to be sore after the infusion and found a warm wheat bag/hot water bottle helped. The oxaliplatin can cause a reaction to anything cold so make sure he has a scarf and gloves for covering up after his infusion. I had some gloves with nobly palms for getting things out of the freezer. Cold drinks can feel like you’re drinking broken glass so take the edge off with a splash of hot water - I found blackcurrant juice to be quite nice like this. 
    It’s a good idea to keep a diary as you may find that a bit of a routine develops eg. he might feel tired for the first few days but then pick up and if he feels ok on his non tablets days then plan something nice. If he struggling with something like sickness then tell the nurses - they will give you antisickness tablets but sometimes a different brand can make all the difference.

    I asked my oncologist about working through my chemo (in an office) and she said it was fine but to try and avoid anyone streaming with cold for example - my boss put hand sanitisers out (this was 4 years ago so pre COVID) and everyone was very considerate. 
    Chemo can sound a lot scarier than it actually is so please don’t feel that you both have to become hermits. Cancer and it’s treatment can take over your lives so going into work a couple of days would be great for you - it gives you a break from all the cancer stuff and reminds you that a ‘normal’ life still exists.

    Hope it goes well and feel free to ask if there’s anything in particular that you’re worried about 

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm