Add-Aspirin clinical trial

Hi Bertz. I think Gemmary is on the aspirin trial. Not sure about the fitness trial. Is it the ABC one?

https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-looking-at-exercise-to-help-recovery-after-bowel-cancer-surgery-prepare-abc#undefined

Take care

Karen x

Hi Bertz, Karen is correct I am on the trial, but it is not just for bowel cancer but many other 'trunk' or torso cancers as well.

I was approached early during chemo, and after a few chats I agreed. It wasn't going to hurt me, might benefit me but would potentially help others. So as the chemo wound its weary way to the end (30 weeks over 34 weeks!) I started the pre trial assessment. In other words you take real aspirin for a while, a month I think, while being monitored to see if you can tolerate it. Then I started the double blind trial in Jan 2020 and am still on it. Initially you are checked every 3 months, now I'm on 6m. Most are at the same time as the oncologist checks, so if ever real appointments get going again, they are at least combined. 

I don't know what I'm on, though I suspect aspirin, out of placebo, 100mg or 300mg aspirin. They also do a cognitive type test every year I think, interesting over the phone!! I have had no issues taking this, now just 2 years in. I do suspect that it may have helped with covid, as it is a blood thinner but that is just guess work. They need a blood test before each issue of pills, and a blood pressure check. I get these done at my GP  surgery a day or 2 before the appointment. They also act as another point of contact, as my oncologist kept changing so I never knew who I was under!! Think I saw about 8 in the year. 

Not sure what else there is. I have no problem with the trial, very helpful trial nurses. Any other questions please ask. Have you been approached? I don't know anyone else on it, nor could I find out anything before I started, on this or other sites. 

Thank you Karen. 

Thank you Gemmary. Yes I have been offered the Aspirin trial so I wanted views from those taking it. It sounds manageable and if it is beneficial in the end, I don't mind going for it. Thanks again for sharing. 

Hi Bertz, I'm on it too. Still on the run in period of 2 months where they give you 100mg a day to check for side effects (and that you'll take it reliably). I'm getting bloods checked on Thursday prior to my first check in with trial nurse on 20th of this month. 

Thank you for the feedback Lizzieanne. Do you know if they have any results yet since the programme was started roughly 5 years ago?

There is a website, but I haven't checked lately. If I can find it I will have a look and let you know. I know it started from people on heart medicine, taking aspirin they found a benefit for cancer, hence this trial. That's not phrased very well, sorry but I hope you get the gist.

Found the website 

http://www.addaspirintrial.org/

Its not very user friendly!! I have my checkup in February, so will ask the trial nurse if there is any news.

I was just looking at the website so have the address it's http://www.addaspirintrial.org There is no info on results so far but there was another study which gathered info from a number of studies which said aspirin could reduce chance of recurrence by 20% which would be amazing. These results didn't come from a randomised trial (like add aspirin) so mayn't be same. I've got my first check on 20th so will ask then.

Thanks Gemmary. That'll be great to know the outcome so far. Looking forward for the feedback from your nurse.