Hello everyone,
Unfortunately, I'm new around here. My mom had surgery in 2014 for colon cancer removal. After all of those years, last month the CEA levels was high (around 21 ng/ml) and after CT and MRI examination we found some metastases in her body. One of these (the biggest one) in the liver 4/4.5/4.7 cm, another one in adrenal, a start in the spleen and multiple nodules in uterus.
One month ago the CT scan showed metastases only in liver and adrenal. Now the MRI scan scarred us even more. We already contacted the oncologist that suggested for a MRI (the one that we recently did) and RAS test on the old postsurgery biopsy. We're still waiting for the RAS test, and a new encounter with the oncologist.
She is still postive about the situation and she's not symthomatic yet, but I'm highly scared about the whole thing. I don't know how to deal with it for her, what are the chances, if she's suable for the surgery or not and so on, and the waiting untill we see the oncologist again to find new specific information is killing us.
She started to be aware of her diet, eliminating meat, glucide and lactose from her list. Do you recomand any natural combination untill we see the oncologist that could help reduce the tumors? Also we don't know yet what treatment would be better, if its the chemo, targeted radiation, immunotherapy, so on. From your experience what helped most in this type of situation?
Sorry for my bad english and the chaos in my ideas, I'm new in this type of situation and I'm trying to asimilate information as fast as posbile and also to keep a rational thinking and not to overthinking on the whole thing.
Welcome Stug132 what a blow to discover that after all that time .
I am going to suggest you filter very carefully where you draw information from on Google as a lot of new treatments have emerged in the last five years and they are not reflected in the stats yet .
My own mum was depended on chemotherapy to reign in a spread and give some shrinkage to enable other options to open up . In fact you will see people using chemotherapy alone on the boards as a maintenance treatment for five and six years . It’s not without hope but it is individual and takes the oncologist time to see how your mum will respond to the treatment and that is hard at times . However it does get easier emotionally . They say in a stage 4 setting it’s more of a marathon not a sprint . Getting your heads around treating it like a chronic condition and slowly reducing the tumour load in the body was a way I found easier to handle . Each time I thought took her further away from the tumour burden she had at her diagnostic scan .
A lot of research going into things that are actually quite easy to do like moderate exercise like walking , music therapy etc , have benefits during treatment .
I would previously say most people world wide with a spread would go onto chemotherapy as it gives the systemic benefits of working on the visible and micro disease at the same time . But now in some countries Immunotherapy is the first line approach depending on the cell type .
If you click on my user name you can read my mum’s story .
Its not without hope but it is tough for the patient physically and emotionally and it’s tough on the family emotionally. We are here to support you all .
Take care ,
Court
Helpline Number 0808 808 0000
Thank you court!
Really apreciate your support and I'm happy for your mom that had earned the 5 year bedge, it gives hope in this kind of cases. Hope the situation would be similar in my case too.
Also about the new information on google about treatments, can you give me, from your experience, some links with trusted sites to make some research from?
Stug.
https://www.nice.org.uk/guidance/ta709/chapter/1-Recommendations
https://www.bowelcanceruk.org.uk/news-and-blogs/news/new-hope-for-some-advanced-bowel-cancer-patients,-after-nice-approves-drug-on-the-nhs/
https://www.uclh.nhs.uk/news/immunotherapy-bowel-cancer-could-change-clinical-practice
https://bowelcancerorguk.s3.amazonaws.com/Publications/TreatingAdvancedBowelCancer_BowelCancerUK.pdf
The first three links are for Immunotherapy if the cell type is appropriate. You would need that information first although there is a current clinical trial looking at how it works in other cell types .
The last is a general treatment options in a stage 4 setting and you will see bowel cancer is actually more fortunate than some other primaries as it has quite a lot of chemotherapy options that oncologists can use .
Hope that helps a .
Take care ,
Court
Helpline Number 0808 808 0000
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