Hi. I posted at the beginning of my husbands cancer journey. He completed 5 weeks of chemoradiotherapy and his scans did show a good result. We were aware that he would have to have his rectum removed and a permanent stoma. Been to Christie's today and they say it's not as clear cut as we thought. Because his tumour grew outwards, front to back he will need his rectum, pelvic muscle and coccyx removed as well as any further tissue and subsequent plastic surgery to sort the hole out that will be left in his back. Absolutely devastated and so scared! X
Hi
Sometimes hearing the extent of the surgery is very , very frightening and there was many times I wished I could have erased the surgeons words whilst understanding they need to fully consent and it was part of the process .
My take from what you have written . It’s a bit more complex for sure but you are in the very best hospital , he is still operable and they will take you both through it step by step . Others have had their coccyx removed but might not be around here to encourage you at the moment .
Truthfully it was only when my mum was safely through that I felt I could settle a little .
Hold onto the fact he is still operable and in the U.K. they still only operate with curative intent .
We are here with you to support you both .
Plastic surgeons can be involved in some bowel surgery so whilst it sounds frightening others have come through this .
Does he have a date scheduled?
Take care ,
Court
Helpline Number 0808 808 0000
Hi Court. He has to go back tomorrow for an MRI. He was originally being treated at Royal Bolton Hosp..but Christie's have now taken over. His last MRI was in October so they want to check there are no changes, if not they will have him in in January, if anything has changed they want another round of chemo before operating.
Thanks for replying..its just overwhelmed me today..the sheer scale of the operation. I dont know anyone e that has been through similar.
Thanks x
I have seen similar on previous posts and the surgeons most definitely will do . My mum had to have more chemo but the upside was better margins , although in her liver the fear is the same .
You have been passed to a centre of excellence where the surgeons are skill and trained to that level of complexity. I am still grateful to this day that my mum got referred to one . Your local hospital did the right thing .
Hopefully surgery will be early January and my way of coping was to look at the long game angle . Aim at the cure and take the road that leads to that .
It is very overwhelming and you are only human . There were days I had to find more solid ground too . I just about fell off my chair when the surgeon said he was removing 73% of my mum’s liver but I could see her out the corner of my eye and I held it together.
I honestly felt unraveled until she was through it but she got there and the skills of the surgeon was just amazing .
How is your husband coping ?
Court
Helpline Number 0808 808 0000
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