Small Bowel Cancer

Oh my lovely, I don’t know what to say. Are you on any palliative treatment? Stage 4? 

Hi Sarahserena.

I have a palliative care nurse coming to see me on Tuesday. App he is coming to see me bout pain relief. 

Hi 

Sometimes words feel so limited but I am sending both you and your wife all my love and support . Here  if you need someone to listen . It is a difficult disease for sure .

Much love ,

Court x 

William, I am so sorry to read this, there are no words.  Can you not have maintenance chemo to keep things stable?  x

I'm sorry to hear this William. I hate cancer so much, it takes so many good people far too soon. No one should have to plan their own funeral at 56, life is so cruel. 

What was the reasoning for no more chemo? What about clinical trials? 

No chemo because it was making me so sick. I live in N Ireland. No mention of clinical trials. Chemo had been reduced by 60% but still making me sick. Due to the tumours being in my small bowel my food I eat is not being absorbed there fore I am not gaining any weight. I have been on Creon tablets for 6 weeks which help to break down food so more easily absorbed but not working. I am fading away. 

Hi William,

so saddened to read your post what a terrible year for you and your wife.. .....I think we can all feel a certain there but for the grace of god..... 56 is too young and its a devastating diagnosis. I am sure you both were planning your future and how your life was going to pan out and then WHAM ..

Its not fair, cancer is never fair 

http://www.nictn.hscni.net/portfolio/

Some info on the clinical trials in Ireland. Not seeing anything obvious but thought I would attach the link anyway . Also I totally understand if you are not tolerating treatment it  may not be appropriate at this juncture.
A lot of trials are dependent on location . 

You are going through a lot . Are you getting support as you organise your care ?

Take care ,

Court 

I asked my District Nurse 3 weeks ago for a seat for shower and am still waiting on it. I have a palliative care nurse coming to see me on Tuesday to talk about pain relief. I have lost that much weight that I am fear I am getting a bed sore on my behind. I am hoping the district nurse can give me something to help me.

Awful time 

Oh no.

There’s nothing I can say. I just wanted to let you know Im thinking of you