Devestating News

FormerMember
FormerMember
  • 3 replies
  • 118 subscribers
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struggling so much with family member diagnosis

chemo cancelled , due to white cell low , wt loss , 

recent sepsis & hospital admission ... very low point 

don't know what to do or say ....seem to keep saying wrong things 

do patients want to talk about anything but diagnosis .....??

is there a hope at stage four ....

so low at the moment , positivity being stretched ......

what to do or say ..losing positivity 

help advice please 

  • Hi 

    I am sorry to hear you are having a tough time .

    Has chemo bern stopped to allow them to recover or for good ?

    Are you able to ask them how they want to approach conversations . I know in the beginning I was on a different page to my mum . I wanted her to pursue a pathway of acceptance with all her wishes fully known . On the other hand my wanted to go about her life as normal , focus on her wellbeing and what she could control and stay connected to her life including conversations. I learnt with time to let her take the lead and I followed that . I do remember feeling lost at that point so I totally understand the not feeling as though you are getting it right part . 

    They have obviously been very ill with sepsis so I think taking time to get their priority health needs sorted is a must then you can get a better feel for what options are open to them . 
    My mum had a few horrible emergency admissions but they supported her through it .

    I think if treatment is still possible there is hope . Also the chemo may have also been effective . Have they had a scan recently?

    You are obviously struggling and I think our helpline staff would be able to support you . 0808 808 0000. I think being able to have a conversation with someone who understands is really important.

    Take care ,

    Court

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Thank You For your reply

    feel helpless and at a loss 

    scans after 4-5 chemo sessions show progression in disease ..

    plan to change chemo ..when they have picked up from this decline ...

  • That’s so hard on you all . Remember our helpline is there is you want to chat in person .

    Chemo can be rough , but hopefully they will get a chance to gather some strength and nutrition for the next round .

    We are here for you . Please feel free to off load . It’s what we are here for .

    Take care ,

    Court 

    Helpline Number 0808 808 0000