struggling so much with family member diagnosis
chemo cancelled , due to white cell low , wt loss ,
recent sepsis & hospital admission ... very low point
don't know what to do or say ....seem to keep saying wrong things
do patients want to talk about anything but diagnosis .....??
is there a hope at stage four ....
so low at the moment , positivity being stretched ......
what to do or say ..losing positivity
help advice please
Hi
I am sorry to hear you are having a tough time .
Has chemo bern stopped to allow them to recover or for good ?
Are you able to ask them how they want to approach conversations . I know in the beginning I was on a different page to my mum . I wanted her to pursue a pathway of acceptance with all her wishes fully known . On the other hand my wanted to go about her life as normal , focus on her wellbeing and what she could control and stay connected to her life including conversations. I learnt with time to let her take the lead and I followed that . I do remember feeling lost at that point so I totally understand the not feeling as though you are getting it right part .
They have obviously been very ill with sepsis so I think taking time to get their priority health needs sorted is a must then you can get a better feel for what options are open to them .
My mum had a few horrible emergency admissions but they supported her through it .
I think if treatment is still possible there is hope . Also the chemo may have also been effective . Have they had a scan recently?
You are obviously struggling and I think our helpline staff would be able to support you . 0808 808 0000. I think being able to have a conversation with someone who understands is really important.
Take care ,
Court
Helpline Number 0808 808 0000
That’s so hard on you all . Remember our helpline is there is you want to chat in person .
Chemo can be rough , but hopefully they will get a chance to gather some strength and nutrition for the next round .
We are here for you . Please feel free to off load . It’s what we are here for .
Take care ,
Court
Helpline Number 0808 808 0000
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