Hi,
My mum, who has non curable cancer that has spread from bowel to lymph nodes, both lungs and liver, has been offered a course of treatment to potentially lengthen her life. The cancer drugs would be administered by way of a PICC line into a vein in her chest and the line would be left in place in the arm. The infusions would take place over 48hrs and therefore she will be sent home with the pump fitted to the line. She is extremely anxious about having the line put in place. Can anyone out there let me know of their experiences of PICC lines and if it is as daunting as it sounds or, hopefully, not!. Thank you in advance. Chris.
Hi Chsskg, Chris.
I had a PICC line fitted at Guys for my 3 months of back up chemo. The procedure was simple and painless and I had a tube, like a canula, on my left upper arm. It was cleaned and redressed weekly and I had a protective sleeve to put over it for the shower. Blood tests could also be done through the connection, so less needles! (I don't know how old your mum is but I was 73 at the time, so age doesn't make any difference.)
I hope all goes well for your mum, John
Hi . I am not from this group, but did have a PICC line in for several months for my own cancer (bladder). I found it totally painless going in. After insertion, a quick chest x-ray is done to check it is properly in place. Once in, there is a small cannula on the end which is covered with a dressing. It is not painful or uncomfortable and you can pretty well carry on as normal as long as no heavy lifting or strenuous exercise. It will need to be flushed out once a week to keep it from getting blocked. Done by a nurse and again painless. Important not to get it wet to prevent infection. You can get waterproof covers for bath or shower, but I made do with clingfilm. I also bought a roll of tubi grip, the elastic bandage, and cut a fresh piece off each day to keep it covered and tidy. The infusion pump is similar to a baby's bottle. Kept in a pouch on a belt. The only problem is working out how to get clothes on as you cannot take it off. Once you work out how, it's no problem. In bed, I tried various ways of how to keep the bottle, but found the best way was to keep it in the pouch on my waist and had no problems sleeping. I had a bottle for a week at a time. Because the drugs are infused so slowly over a long period, any side effects are kept to a minimum. Hope this goes to reassuring mum. Best wishes.
Hi . Best thing I did! So much easier on the veins - the pain in my arm after the IV was very unpleasant and I was close to tears when they took the sticky plasters off. Had the picc line fitted and it was so much easier. John has given you a really good reply. They numb your upper arm with a gel, make a tiny nick and then feed the tube in to a vein near the heart and then X-ray to make sure it’s in the right place. Mine was slightly to the inside of my upper right arm and the nurses then ‘fold’ everything up and out a large sticky plaster over it. This is then removed to flush the line in between treatment and also to administer the chemo then the plasters put back on. I had a small stretch of crepe bandage which I popped over it too. She won’t be able to go swimming or play golf or tennis but you can get a waterproof cover called a limbo sleeve on prescription which she can wear in the shower.
Hope the treatment goes well
Karen x
Hi Chsskg,
I had my picc line fitted at Guy's cancer centre then had my first cycle straight after. I was really nervous about having it fitted but it was absolutely fine. One of the nurses used a tubigrip bandage to make a sort of cross body bag to hold the bottle. It's a similar size to a can of drink. The line goes into the upper arm. I had it in my left arm as I'm right handed in case any pain, which I didn't. The first few nights were a bit nerve wracking as I've also got an ileostomy. Once I'd got used to it, I was ok. The district nurse would come to disconnect it and flush the line. I was measured and given the details for a waterproof cover that my GP did a prescription for. You can also get them from Amazon. I also bought some picc line covers from a website called annabandana.co.uk. Looking at a leopard or floral print was a bit nicer than a bandage. Guy's gave me a big bag of everything that the district nurses would need. Your mum could probably have it done at the hospital but might not feel up to it. Your mum will be given a book with contact numbers and to keep a record of any side effects. Don't worry about your mum feeling anxious or overwhelmed on the day as I'm sure the chemo nurses will be as lovely as the ones at Guy's. They'll look after her. It's probably worth her taking a drink and something to eat/to do as she may be there for a few hours. The first session might be a bit daunting because it's new and it's chemo but all very doable. Hope it all goes well.
Cheryl x
Thankyou. That was so helpful and reassuring. Unfortunately my mum has now been told she will have a Central Line/Port fitted which also goes into a vein near her heart but emerges out of the right hand side of her chest. I imagine it will be very similar to a PICC line but I'll post another question on the forum to see if anyone has specifically had any experience of a Central Line fitted. Thanks again for your reply. Best wishes..Chris.
Thankyou Karen. That was so helpful and reassuring. Unfortunately my mum has now been told she will have a Central Line/Port fitted which also goes into a vein near her heart but emerges out of the right hand side of her chest. I imagine it will be very similar to a PICC line but I'll post another question on the forum to see if anyone has specifically had any experience of a Central Line fitted. Thanks again for your reply. Best wishes..Chris.
Thankyou. That was so helpful and reassuring. Unfortunately my mum has now been told she will have a Central Line/Port fitted which also goes into a vein near her heart but emerges out of the right hand side of her chest. I imagine it will be very similar to a PICC line but I'll post another question on the forum to see if anyone has specifically had any experience of a Central Line fitted. Thanks again for your reply. Best wishes..Chris.
Thankyou Rily. That was so helpful and reassuring. Unfortunately my mum has now been told she will have a Central Line/Port fitted which also goes into a vein near her heart but emerges out of the right hand side of her chest. I imagine it will be very similar to a PICC line but I'll post another question on the forum to see if anyone has specifically had any experience of a Central Line fitted. Thanks again for your reply. Best wishes..Chris.
It'll probably be a bit easier for your mum if she has a port. I don't think you have to worry about getting it wet so no faffing about putting a waterproof cover on.
Cheryl x
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