Hello everyone. I am new to this forum. Maybe I will be able to get some advice? Earlier this year after a very short stay in hospital for a breathing problem at that time I had lots of blood tests. I was told I had acute anemia and my GP told me this had to be investigated. I had no knowledge anything was wrong although looking back I was feeling tired. It was arranged for me to have a bowel test so I returned this to my surgery and the next day I was called to inform me it had returned as a positive, showing blood. There was no blood visible to the human eye.
I was then sent to the hospital to have a gastroscopy and colonoscopy. The colonoscopy revealed a cancerous tumour and an appointment was made for me to see a bowel surgeon. I was told surgery would be necessary. Before my admission I had a CT scan of my main organs to see if the cancer had spread and my lovely surgeon told me everything was clear. That was a huge relief. I had a right hemicolectomy on 14th July. It was a shock to hear this news but I was pleased the surgeon was going to do everything to help me. Before my admission I had to have iron infusions as my levels were still very low. She told me the tumour was "nasty" and in her opinion had been there for some considerable time and was glad to get it out. I was discharged on 20th July and informed I would be receiving a telephone call from a colorectal nurse on 23rd July with the results of the histology. This was after the group of consultants/specialists had met to discuss patients results from the previous week.
I did receive this call and was told the histology showed abnormal cells plus vascular invasion (although not into the lymph glands). I was told chemotherapy would be necessary. I found this news more upsetting than the original cancer diagnosis with so many mixed emotions .An appointment would be sent to me to see an oncologist. The appointment was last Wednesday. After arriving for my appointment on time I had a horrendous wait of well over 3 hours before I saw the specialist. I was only in with her for just a few minutes and she read through my notes then stating no chemotherapy was necessary! When I questioned why I had been told I would have to have it, she could not answer me. Although I was overjoyed with this news I kept wondering why I had told the opposite just 10 days previously. Has anyone experienced conflicting information like this?
Hi, , I too had vascular invasion, and was recommended chemo, though it was not classed as essential, but recommended. The collectoral consultant thought it worth doing, a sort of belt and braces approach. I started to see how far I got, as it was a low dose for 30 weeks. Eventually I got to the end. Full history on my profile. Mine was rectal rather than right rising, but I guess the approach might be similar. Probably best to chat with your collectoral nurse again, and see what's going on. Take care
Thank you Gemmary for your reply last night. I have two specialist colorectal nurses who I can speak to for help/advice and after I left a message last Friday one rang me. It wasn't the one who had given me my histology results. She said she would make enquiries and get back to me but I have heard nothing. Strangely I went onto my doctor's website last night & clicked on "test results" to see if there was any mention of the chemo but it had been completely wiped clean! Only a few weeks ago I looked at past blood results and everything was visible then. I just found this strange. All I want is an explanation.
Hi Sandra P.
A big welcome to the forum but so sorry you find yourself here.
I had one lymph node out of 12 affected plus intramural vascular invasion (IMVI) and had 6 cycles of FOLFOX chemotherapy. Interestingly when I spoke to my oncologist just before the end of my chemotherapy he said I was offered chemo because of the affected lymph node, had all lymph nodes been clear I wouldn’t have been offered it for IMVI.
Sorry I can’t give any further insight into this but certainly worth asking why they don’t offer chemo for IMVI (if this is indeed the case).
Hope you can get a satisfactory explanation it would be interesting to know.
Take Care
Net77
PS: I was also given conflicting information (to what the oncologist) told me from the colorectal nurse but not about this topic.
Hi . Are you EMVI or IMVI positive? I wonder if they give chemo for EMVI but not IMVI? Either way I think I’d be chasing someone up for clarification x
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