Terrified starting chemo ...

FormerMember
FormerMember
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Hi am new here so hope I explain this right .

I was suffering from constipation for 8 days but was feeling ok I was still working away and using over the counter medication but on Saturday may 1st I starting vomiting up nasty brown stuff so my daughter rang the care doc who suggested ringing an ambulance incase my bowel was leaking and especially after the constipation,  was brought to A&E had an enema and drank litres of movical  , numerous examinations on my stomach from different doctors only to be sent home 18hrs later feeling rotten .. And then on the 

7th May 2021 I was admitted to A&E with severe vomiting ,dehydration and pain in my left side I really dont remember much about that day but to cut a long story short I had a major operation the following day to be told I had a tumour and lymph nodes removed from my large bowel , even though I had 60% of my bowel removed I did not need a colostomy bag which I was lucky .I was sent home a week later and told I would be called to meet the following week for my biopsy results , however cyber attack hit and 1 week turned into 3 weeks waiting , it was mentally horrendous on me and my family to say the least waiting on those results. 

Plan forward is my surgeon removed all cancer and 68 lymph nodes of which 6 were infected so my oncologist recommends 12 rounds of chemo to be given through a portacath which I had inserted on Monday 5th .My chemo is starting Tuesday 13th and I am so nervous as this has all happened so quick   I am terrified of the side effects and feeling  very emotional as I feel fit and strong again after my surgery only to be floored again by chemo ..I know I am not alone but feel very tearful last few days .x

  • Hi Sammiej

    I'm not big on posting here (or anywhere tbh!) but your post hit a nerve with me.  I had surgery last August, followed by chemo and, like you, felt very aware that having made a good recovery from surgery I was going to be knocked sideways by chemo - and I was!  I had just about every side effect going and even now, almost 7 months after chemo finished, am still struggling with peripheral neuropathy.  However the good news is that I'm still here and apart from the pn all the other side effects - oral thrush, alternating constipation and diarrhoea, dreadful tiredness, lack of appetite to name just a few (I did say I'd had just about every side effect!) are now fading memories.  I don't know what chemo you're having - mine was oxyliplatin and capecitibine (spelling not necessarily accurate) but please make sure you keep a note of any side effects and be sure to let the chemo staff know what's happening.  Chemo is about as tough as it gets but not everyone experiences its worst side effects and I hope this will be true for you. 

    I wish you good luck and good health.

    Helen

    SFUC
  • FormerMember
    FormerMember in reply to SFUC

    Hi how many rounds of chemo and which chemo did you have ? 

    I am sorry you had a tough time and this all does sound totally scary so I have a right to worry I think 

    Take care 

  • From what I've read, cycles differ in how they're administered and their duration. In my case I had an iv dose of oxypilatin followed by 9 days of capecitabine, then 4 days "off" during which time I had blood and covid tests before starting all over again. I had 6 cycles in total although 2 were not completed due to side effects. Cancer had been found in 2 out of 19 lymph nodes tested. I don't think you should take my experiences to heart. I've read many stories of people who had no or minimal side effects. Be guided by your chemo team and keep them informed about any side effects you experience. Set small targets and give  yourself small rewards for reaching those targets. It really is doable.

    Helen

    SFUC
  • FormerMember
    FormerMember in reply to SFUC

    I am getting it through a portacath every 2nd Tuesday for 6 mths . 12 rounds altogether. It is Folfox chemotherapy x

  • I feel your pain I have suffered no end to tbe point im giving up after 6 can't take any more .xxx

  • Hi 

    It might surprise you to know a third of patients getting chemo for bowel cancer have very minor symptoms if any and sail through ! Another third have some symptoms but manage well  with assistance and the other third have more difficult symptoms to manage .

    My mum fell into that group but had her dose adjusted and it really helped her , she managed two years of chemo so hang on in there . Your chemo is mop up chemo so lots of options for your team to work with !

    It is totally understandable to feel apprehensive about a new treatment like that ! But the team will help you through ! 
    take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Oh Court thank you so much for this text it means alot . xx