Hello once more!
The saga continues, and the plot thickens! I spoke to the colorectal nursing team today, to inform them that my blood results should be ready for them (they have to call for them, as they are part of a different trust and system, so do not seem them automatically.) We discussed my many symptoms, and they said that they are concerned. They will organise CT/Colonoscopy as soon as they possibly can, and arrange a face to face appointment with my surgeon to explore possibiities.
However, they also said that the symptoms, while identical to those I had when I was diagnosed with cancer, are also possibly Lower Anterior Resection Syndrome. I did not know this even existed, nor was I warned it might be a side-effect of the surgery. It seems it is indeed a thing, albeit not a common one, impacting only a small percentage of those who have a resection. I'm looking into it, but wondered - has anybody else here heard of, or experienced, this condition?
I suppose it is a preferable alternative to cancer, yes, but if I am going to be wrestling with this on a long term basis, it is going to be a singularly unpleasant houseguest!
Robin
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Hi Robin , it’s more common than you think . There is a group on Facebook called Living with lower anterior resection syndrome which I find very helpful 
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