Hi
I'm on Folfox at present (4 two weekly cycles so far) but have been told my Chemo will probably need to change, because the cancer has, possibly since surgery (22nd March), spread to the Liver. There is one lesion 1.6 cm.
I'm not sure what all the options are yet, as my oncologist is awaiting advice, from a London liver specialist, but have been warned 6 months chemo will probably begin again, with a different type and possible surgery half way through the chemo.
Any advice re cold caps please??
Also any advice whether (if given the choice) to have liver resection OR see if 6 months chemo shrinks it first and ask if it could be blasted? (Micro wave blasting or something similar sounding)
My Macmillan nurse is excellent. She's advised there may be different options to consider, hence any advice is welcome.
Stay safe. Stay positive.
Nettie 123
Hi Nettie123
I don’t actually know much about the cold cap so hopefully others will pop on with information.
You are in a more favourable group I think, as according to an article I read only 10% of liver mets have one solitary met apparently so I think you might have more options of treatment open to you than say my mum who obviously needed the more aggressive approach. I know Nelly1955 only used Radio frequency ablation but I am not sure if there were other factors in that !
My own mum had six cycles of chemo , given her spread then surgery . Nothing after !
There is usually current research that governs these approaches. You could ask your team what the latest research information is !
I know when my mum went for surgery on her lung met the oncologist mentioned specifically the research comparing Radio frequency Ablation over surgery ! You could ask and that might help give you a handle on the right direction for you.
These choices , whilst good to have are not easy to make !
We have navigated a few !
Take care ,
Court
Helpline Number 0808 808 0000
Hi Court
Thank you for your swift response. It is always good to hear about the experience of others. I've read your profile and often feel quite reassured by the progress your mum has made.
Yes, that's a valuable point re: asking my team about the latest research. I will remember to do that. I may do a bullet pointed list of questions to help me remember everything when I speak with my oncologist.
Thank you again.
Stay safe and best wishes for your Mum's continued good progress.
Nettie123
Hi Nettie123
I think you will find the oncologist quite helpful in that regard . It was interesting to hear what was being achieved and the research that was fine tuning their practice. Since my mum was diagnosed I can see a shift even in chemo regimens and slowly you realise they have discovered better outcomes with different approaches.
In some cases it does give you better insight. Right back at the beginning I read research articles from one end of the world to the other as surgeons were really becoming more involved with liver mets . Not many people were referred onto surgeons and I spent my days here campaigning for surgical reviews , often fallen on ears that just did not grasp it .
However now that has all changed and most people are thoroughly reviewed where possible .
Give the small tumour burden and the fact their is only one met it will probably be more a case of which option is best but I guess that is a good thing in its own way ! My mum was fortunate to have that with her lung met but again narrowing down the best option was tricky .
Hopefully your oncologist will be busy working out the fine details .
Take care ,
Court
Helpline Number 0808 808 0000
Hi Court, Hi Nettie123 I had radio frequency ablation on a liver mett. The Dr was pleased with me and said it worked. I went in and had a GA then you go into a ct scan and it guides where they put the needle. I went home the following day. Feeling a bit anxious another follow up scan on Sunday for pelvis rectum amd liverMRI. Sending you best wishes with your treatment Nerrie. Hope all is well with you Court and your mum. Love Nelly x
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