Blood tests done...

No it’s probably not gonna be fun stoatlord but you know we’ve got your back on here

Take care

Karen x

Hi  Robin...Well remember seeing your posts way back....When I was diagnosed in April '19.

I guess it depends on your hospital trust right now......But in the past year of follow up scans/ Procedures, I have never had to wait, plus no cancellations ever. (I'm Dorset.) Hope you will find the same.

Many best wishes

Marianne 26

Thank you! I know people will back me up. This is such a good community!

Thanks :D I am hoping I will get fast tracked. My nurse contact has been super amazing so far, so I am really hoping she can pull a few strings!

Robin.

All the very best stoatlord, fingers crossed for you.

Heard from the colorectal team today. They confirmed that I have clear bloods, so have requested the scans to be done immediately. Got to say this for them, they move darn fast when they have to!

Robin.

That sounds like good news, so hope the scans are both soon, and carry on the trend!

Moi aussi!

I'm at the stage that the impostery syndrome I have been having most of the year is most assuredly defeated. There really IS something seriously wrong, whether that be cancer, LARS, or who knows what else! I just want medical people to work out what it is, and do something about it, because I am now officially fed up. I did not get to bed until after six AM this morning, owing to being glued to the toilet seat. Metaphorically. Not literally. That would have been annoying, but I could have laughed about it later. I am not laughing now.

Part of me is feeling like I did when this all became an issue four years ago, when symptoms really started showing. (And I wish I had done something about it THEN, and not waited until it hospitalised me a year later!) I am wondering if the cancer would be better than LARS. At least the cancer is a condition that CAN be treated, and vanquished, in many cases. LARS is a life-long condition, just as colitis or Crohn's disease would be. What would be the best option, of all of these, for my quality of life?

Whatever it is, I hope it is better than I have now, as being a prisoner in my own home, after such a long lockdown, preceded by being unable to go out at all due to illness... I am officially done with looking at my own four walls!

Robin.

x

I'm really sorry,  stoatlord, wish I could help. In my case the LARS seems to be settling, 2 years after the op. I don't get as constipated as I drink like a fish to keep things moving. Seems that 3 poos a day +/- 1 or 2 is 'normal' . Occasionally it will cluster, often then with diarrhoea, but these seem to be getting fewer (fingers crossed!!!!) Still can't always tell gas vs poop so err on the safe side. I always know where a toilet is, should I venture out!! Sorry for the graphic, but may help someone else if not you.

All the best, I feel for you being shut in,,not good,  having gone through 13 months or so, myself. But being rural at least I can get outside.

Take care

I got a ding on my phone today, telling me I have a hospital appointment next week. Not what it was for, though, and I only hope a letter arrives soon to do that. I am guessing it is either a CT scan, or an appointment to see the surgeon. The latter makes little sense BEFORE they do a scan, so I hope that is what it will be for. Still, as good as their word, the nursing team moved very fast for me.

Fingers crossed!

Robin