Capox/Side Effects/Reduction

Hi 

My mum was in a different situation as she was a stage 4 patient and it needed to do a lot of works! It was also in the middle of the most awful snow so I appreciated your comment about the sun !

Just to answer your question . The first year of chemo my mum stayed on the full dose and it was really tough ! The second year the kept the same combination as despite being a brute worked really well ! They reduced her dose and also kept her in overnight , slowly administered it right through the night . I was able to pick her up in the morning and her legs were much better and all the side effects greatly reduced . It became manageable.

Hope that helps !

Court 

Ah thanks for this. Mine was actually stage 4 too but the liver mets were very small (11mm and 4mm) and successfully resected with clear margins. The issue with the side effects was that they went from a couple of days in round one to 2 weeks in round 2 which is such a leap. I also had a period that lasted for the duration. Amazingly I was neither anaemic nor dehydrated but oncology thinks if another round went in without a rest it might be a different story. 

Strangely enough the second cycle was always the toughest for my mum . Her first one was a complete non event and you would never have known she was on chemo . The second one was such a shock ! 
Well done on stay hydrated ! That was a challenge for sure ! 
Great to hear your liver resection was successful too! 
She had six cycles at a reduced dose and comparing it to the first year she was able to go out and about and see people etc ! The first year it was just not possible.

Hope they get the dose balanced out for you . 
Court 

Hi  I’m on high dose Vit b6 prescribed by the oncologist to help with Neuropathy. They are called Pyridoxine . X

Hello Elley.  I have struggled with 2 sessions.so far of oxyplatine iv with regard to swelling up of throat immediately post iv (scary), numbness in jaw, tongue, pins and needles in feet and hands.  Am ok on the pills apart from the odd bout of runny tum.  My concern which I have voiced to my oncologist is the long terms effects of the side effects of the IV.  My chemo is a 'mop up'chemo post surgery but my surgeon and oncologist both want me to do at least 4 in total.  I read two very respected medical journals (one being The Lancet) that said because of the side effects two groups were split up one to do 3 months another group to do 6 months and those that did 6 months re survival rate 2 yrs later were only by 1% difference  against those who did 3.months - and those that did 3 months had no long term side effects unlike those who did six months.  Its a hard decision to make but of you can do 4 then get scanned like i plan to that shld be okay as its mop up for you.  The key is the very regular scanning sessions post end of treatment.  Good luck!  Ps i had to make myself eat even if it was just toast and marmite for first few days as i realised strength is key to recovery.