My daughter and her treatment

Hi 

I am really sorry to hear your daughters situation. It is very hard on you . 
If you like our staff on the Macmillan helpline have nurses who have a lot of experience in the end of life situations would be able to talk this through with you and offer you guidance and support. 0808 808 0000.

My own understanding of the situation is a tipping point occurs when the disease increases and more pain meds are required to assist in daily life . The patient may be complaining about pain levels etc . It could just be they are covering all eventualities but it sounds as though your daughter has been involved in the discussion.

But please phone our team as they have direct experience and can help you .

Take care ,

Court 

Hi 

I have asked the a Macmillan team to have a look to see if they can assist you further .

Take special care ,

Court 

Hello and thanks for your time and email. I would welcome any help that maybe out there

You can chat to us here at any time as well ! We are very much here to support you but I would like to ensure you get the correct advise and they are the best people to help you .

Such a difficult time for your family and I send all my love ,

Court 

I am very very sorry to hear this, my wife is a district nurse specialising in palliative and end of life care and im afraid it sounds like what my wife calls the just in case box, this generally holds sedatives and an emergency dose of pain relief.

It may be helpful for you to try and meet up with the nurse so she can explain things like syringe drivers and emergency meds, St Barnabas are also very good and their support and nurses tend to be more focused on end of life, again I am very very sorry to read and indeed write this, all the very best

Thinking of you 

Hope you managed to get some support ! How is your daughter this week ?

Take special care ,

Court