Hello all.
I just wanted to join the group as i am 3 months on from diagnosis I am still struggling with new reality.
I had grade 2 breast cancer 11 years ago. Chemo, mastectomy, nothing in lymph nodes and then 10 yrs on letrasol. I was so certain I was all clear!
I turned 60, and came off letrasol as instructed (v happy to do so, sick of hot flushes) and within 3 months odd aches and pains started, mostly in my back. Finally an MRI (in July. 7 months after stopping letrasol) and the PET/CT scan showed multiple lesions, spine. Ribs, hips, etc.
Since early oct I have been treated, denosumab, palbociclib, and new trial drug. Plus what seems like lots of morphine to try and control the pain.
It seems like a long and bumpy road ahead, all the uncertainty of how long things will work for, where it might "appear" next, how to cope with ever changing symptoms. I have a wonderful family, husband, son, siblings and v elderly (but still active at 90) mum. I struggle with crying, with explaining my feelings, not being too negative or unrealistic positive.
I guess its just good to hear other peoples stories, to take advice, so, here I am !!
