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Hi, I’m new here and I was just looking to see if anyone had any information.

my sister now 31 was diagnosed with breast cancer just over a year ago she had her breast removed and she seemed to be on the mend only on what I think was her 6 month check ( it’s all a bit muddled because everything seemed to happen so fast) she was then diagnosed with secondary bone cancer in her spine rib and pelvis which is absolutely devastating for us as a family my sister has had a very difficult life as she has something called Prader–Willi syndrome which contributes to her being obese she also has autism amongst other issues unfortunately because of her life long disabilities she is no longer able to get on a scanning mDisappointedhine so quite honestly we as a family don’t know how the cancer is progressing all we do know is she unable stand anymore when she moves from bed to chair/loo she is in excruciating pain she is reDisappointedly struggling to breathe and is on oxygen full time now also when she was in hospital last week she was suffering from what we thought was a pulled muscle from trying to lift herself up but the doDisappointedors said they think her rib has broken Disappointed so I suppose my question is really does anyone have any firsthand experience with this and can offer any advice/guidance on what to expect going forward 

thank you for taking the time to read this and insight would be greatly received

xx

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read about all the problems your sister is experiencing and it sounds like a very tough time for you both.

    I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    You might also find that joining and posting this in the secondary breast cancer group is helpful, as you'll then connect directly with others whose breast cancer has spread to their bones.

    If you'd like to do this, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    It would be great if you could put something about your sister's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you so much for your reply I will definitely do what you have suggested 

    Thanks again Pray