Hello, I'm Denora and I was diagnosed with Invasive Lobular Breast cancer 3 years ago and I had a right mastectomy and all lymph nodes removed. I had 8 very high strengths of chemotherapy and had Sepsis half way through and finally had 25 rounds of radiotherapy and then put on Letrozole for 10 years. I felt things were wrong in Autumn last year but my breast nurse said there's nothing to worry about and that was on 3 visits. In February I saw my Oncologist because the Letrozole was not agreeing with me. He saw something was wrong straight away and arranged an Isotope Bone scan. I was in total shock when my husband and I had the results. The cancer is in many parts of my bones starting from my shoulders, spine, hips, femur, knees and small areas throughout the body. I've just had surgery 5 weeks ago to put a metal rid in my femur and screws in my left hip to stop it snapping. I'm on 3 lots of treatment. 1 tablets 3 weeks on and week off and 2 injections. 1 is a bone strengthener and 1 is a hormone injection. The Letrozole did not work at all for me. I start radiotherapy next week on my hip, femur and spine. When I was told the news and he said it was terminal, he said I was looking at 2 to 3 years without treatment but 55 years with. I'm determined to fight that timeline. I'm 56 and only been married 5 years after being widowed and my 2nd granddaughter is due any day. I have too much to live for.
Does anyone else feel the same?
Hello Denora, I am so sorry to hear what you are going through. I also have secondaries. Double masectomy 4 years ago an fo fir past 18 months none cancer in many places. I've Chemotherapy every week and 1 week off. It is so difficult , but it has to be dome. It is not curable but thank god ii is treatable. , and while this is available I will go fo it. You have been through so much, don't give up stay positive , take everyday as it comes. Listen to your team, they will be a great help. New medication and clinical trials are ongoing. I know it is hard, but jeep going. Enjoy yor family x
Hello Denora I know exactly what your going through my story is very similar you can read more of it on the breast cancer forum oncotype DX breast recurrence trial . Lobular right breast stage 2 , but only one node affected.
Diagnosed October 21 right breast removed but no chemotherapy on the basis of the above test .Radiotherapy only. I though I'd got away with it !
I began to feel differently in January that's the only way I can describe it . however the mammogram came back clear in February. In April I saw an oncologist not my usual one, he said the pain I was feeling in my chest was caused by lympodema sent me to the breast care clinic. Very friendly but not helpful, still in pain I went back again on may the 11th at my daughters insistance with a now visable mass on my sternum . My GP guessed immediately that it was in my bones . Isotope bone scan confirmed it stage 4 in six different places. I've decided not to go down the treatment route even though it might mean I die sooner . I too have grandchildren it hurts to think of all the milestones in thier lives that I wont see
I'm 67 I plan to get as much joy out of my that is humanly possible. Pain relief is wonderful nowadays. Cancer will take my body but not my spirit. Luckily I have a strong and supportive family.
Yes it's hard not to be angry, no-one Deserves to get cancer, but when you've never smoked, drink very little and exercised your entire life, it seems doubly unfair. I admire your determination to keep going, be strong be thankful for the small things and vent when you need to . Sending love x
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